The purpose of my program of research is to assess and promote quality care for family carers and patients as they near the end-of-life. My research focusses on the structure, process, and outcomes in service delivery. As part of this work I examine how personal, social, and environmental factors affect care. This work is designed to assist in the development, evaluation and translation of new and innovative interventions to improve access, quality and outcomes in this population.
Health services research, health systems research, chronic illness, palliative care, aged care, supportive cancer care, organizational change, ethics, and research methodology
Evidence based nursing – level 3 (NFY3005), School of Nursing and Midwifery, Queen’s University Belfast
Post Graduate Diploma Specialist Practice (Oncology Nursing), School of Nursing and Midwifery, Queen’s University Belfast.
Issues in Dementia Care – (HSN3022), School of Nursing and Midwifery, Queen’s University Belfast
Model of Dementia Care – (HSN3031), School of Nursing and Midwifery, Queen’s University Belfast
Co-investigator, Feasibility Study of an On-Line Intervention for Family Caregivers of Residential-Living Frail Older Persons. Technology Evaluation in the Elderly Network, Canada (Principal Investigator: Duggleby W, Co-investigators: Ploeg J, McAiney C, Parmar J, Holroyd-Leduc J, Peacock S, Nekolaichuk C, Ghosh S, Forbes D, Kassalainen S) 2016-2017.
Co-investigator, Reducing hospital admissions of people with dementia in nursing homes: The role of anticipatory care planning. GAIN: Guidelines and Audit Implementation Network (Principal Investigator: McLaughlin D, Co-investigators: Carter G) 2016
Co-investigator, Advance care planning with older adults who have end-stage kidney diseases. Feasibility of a deferred entry randomised controlled trial incorporating a mixed methods process evaluation. The Dunhill Medical Trust (Principal Investigator: O’Halloran P, Co-investigators: Noble H, Fogarty P, Murtagh F, Brown J, Shields J, Mordon S) 2015-2017
Co-investigator, Partnering together to improve palliative care in Long Term Care. Co-funding from Canadian Institutes of Health Research, Partnerships in Health System Improvement; Alberta Innovates – Health Solutions; Manitoba Health Research Council; Ontario Ministry of Health and Long Term Care; Saskatchewan Health Research Foundation (Principal Investigator: Kaasalainen S, Co-investigator: Costello A, Hunter P, Neves P, Sussman T, Thompson G, Venturato L. Co-Investigators: Akhtar-Danesh N, Bourgeois-Guérin V, Chochinov H, dal Bello-Haas V, Duggleby W, Earl M, Goodridge D, Hadjistavropoulos T, Holtslander L, McCleary L, McClement S, O’Leary J, Papaioannou A, Parker D, Ploeg J, Sinclair S, Strachan P, Thorpe L, Touchette C, Trinidad G, You J, Young L.) 2015-2018.
Co-investigator, ‘Improving Palliative Care in Long Term Care Homes Using Participatory Action Research’. Technology Evaluation in the Elderly Network, Canada (Principal investigator: Kassalinen S, Co-investigators: Sussman T, Neves P, O’Leary J, Akhtar-Danesh N, Brazil K, Bonifas R, Bourgeois Guérin V, dal Bello-Haas V, Earl M, Kelley ML, McCleary L, McKee M, Papaioannou A, Parker D, Ploeg J, Sinclair S, Strachan P, Thompson G, Venturato L, Wickson-Griffiths A, You J, Young L) 2015-2017
Principal Investigator, “Promoting informed decision making and effective communication through advance care planning for people living with dementia and their family carers”. The Atlantic Philanthropies and HSC Public Health (Co-investigators: Clarke M, Froggatt K, Hudson P, Kernohan G, McLaughlin D, Passmore P) 2014-2016
Co-Lead, “Costs and effectiveness of UK palliative care day services: a three-centre mixed methods study of impact upon patients and family carers”. Marie Curie Cancer Care Research (Project lead: Kernohan G, Co-investigators: Hasson F, McCorry N, Coast J, McIlFatrick S) 2014-2017
Co-investigator, ‘Pain assessment and management for persons with advanced dementia nearing the end of life’. The Atlantic Philanthropies and HSC Public Health (Principal Investigator: Parsons C, Co-investigators: Bannin De Witt J, Passmore P, McIlfatrick S, Watson M, Morgan S, Maxwell D, Buchanan H.) 2014-2017.
Cost of conservative management in patients with end stage kidney disease who decline dialysis: lessons from a multi-centre observational study in the UK
Research output: Contribution to conference › Abstract
“There’s a Catch-22”. The complexities of pain management for people with advanced dementia nearing the end of life: a qualitative exploration of physicians’ perspectives
Research output: Contribution to journal › Article
Effectiveness of advance care planning with family carers in dementia nursing homes: A paired cluster randomized controlled trial
Research output: Contribution to journal › Article
Additional searchable ISSN (Electronic): 1477-030X
SAGE Publications Ltd
Scopus rating (2016): CiteScore 3.29 SJR 1.771 SNIP 1.923
Institut Universitaire de Geriatrie de Montreal
Scopus rating (2016): CiteScore 0.53 SJR 0.282 SNIP 0.624
Mary Ann Liebert Inc.
Scopus rating (2016): CiteScore 1.48 SJR 1.127 SNIP 1.146
MA Healthcare Ltd
Scopus rating (2016): CiteScore 0.56 SJR 0.379 SNIP 0.523
Hayward Medical Communications
Scopus rating (2016): CiteScore 0.25 SJR 0.304 SNIP 0.44
Activity: Hosting a visitor › Hosting an academic visitor
Expert Advisor, Evaluation of the impact of the National Dementia Strategy, Health Service Executive, Ireland
Activity: Consultancy, business and community engagement › Contribution to the work of national or international committees and working groups
Activity: Visiting an external institution › Research and Teaching at External Organisation
Contribution to conference papers, events and activities