What Does Success Look Like

Activity: Talk or presentation typesInvited or keynote talk at national or international conference


Summary of recent developments improving the lives of individuals living and working with rare diseases, with particular focus on improving diagnosis and the challenges of communication in NI.
Period05 Mar 2018
Event titleJoint North South Rare Disease Conference 2018
Event typeConference
Conference number4
LocationBelfast, United Kingdom
Degree of RecognitionInternational


  • rare disease
  • registry
  • information hub
  • diagnosis
  • communication