What Does Success Look Like

McKnight, A. J. (Speaker)

Activity: Talk or presentation types › Invited or keynote talk at national or international conference

Description

Summary of recent developments improving the lives of individuals living and working with rare diseases, with particular focus on improving diagnosis and the challenges of communication in NI.
Period05 Mar 2018
Event titleJoint North South Rare Disease Conference 2018
Event typeConference
Conference number4
LocationBelfast, United Kingdom
Degree of RecognitionInternational

Keywords

  • rare disease
  • registry
  • information hub
  • diagnosis
  • communication

Documents & Links

Related content

Press / Media

NVTV: Raising awareness of rare diseases with a focus on diagnosis and communication

Press/Media: Research