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Personal profile

Research Interests

Chronic kidney disease, palliative care, qualitative research methods, mixed methods, end of life care.

Research Statement

As a Senior Lecturer I have made a substantial contribution to improving the care offered to patients with end-stage kidney disease approaching the end of life as evidenced by my publications in leading international journals and my leadership of several research studies including a successful multi-institutional study funded by NIHR. I have a consistent record of publishing peer reviewed publications in the top quartile of impact factored journals in my field. I was successfully returned at REF 2014 and on target to be returned in 2020, as assessed by the School of Nursing and Midwifery REF 2020 review Group. I have a sustained record of leading, and managing to successful completion, a coherent programme of research including successful research bids. Over the past four years, I have exceeded my School’s targets for research funding, bringing into QUB over £560,000 in research income.

As evidence of my significant contribution to QUB’s international profile in research, I am Scientific Programme Committee member of the European Dialysis and Transplant Nursing Association annual conference (previous Chair) and commence a new post as their Chair of the newly established Renal Research Group. In addition I am Associate Editor of Evidence Based Nursing, Associate Editor BMC Nephrology and was previous Editor and English Co-Editor of the Journal of Renal Care. I regularly receive funded invitations to speak at international Conferences, most recently in Sydney Australia at the Renal Society of Australasia in 2017 as International Keynote Speaker. I have received several awards for my work including ‘Eminent Scientist of the year 2009’, an International Award in the field of Nephrology, by the World Scientists Forum; the City University Staff Research Prize, 2009 and the Student Representative Award, City University London, 2010. In 2016 I received the Renal Association Walls Bursary, made by the professional body for nephrologists and renal scientists in the UK, “acknowledging Dr Noble’s significant contribution to the field of academic Nephrology”. I am a Fellow of the Chronic Illness and Palliative Care Research Programme at the Centre for Evidence and Social Innovation at QUB.

I have published widely in research and clinical journals including seminal papers identifying the need for a supportive and palliative care approach for people with end-stage kidney disease. My ‘Concept Analysis’ published in 2007 determined Renal Supportive Care as a dynamic and emerging concept with relevance for the renal community, and I recommended its integration into everyday nephrology practice. One of my papers was the top downloaded article in EBN 2015, with over 26,000 downloads. 'Issues of validity & reliability' http://ebn.bmj.com/content/18/2/34.full and is part of the Research Made Simple series.


Achievements and Distinctions

Leadership Roles

·        Associate Editor: Evidence Based Nursing 2012-

·        Associate Editor BMC Nephrology 2017-

Editorial Board

·        End of Life Journal 2008-

·        Journal of Renal Care 2004-


·        Member of QUB Academic Council - 2017 -

·        Faculty post doctoral group mentoring programme - 2017 - 

·        WAM working group: 2017 -

·        Northern Ireland Palliative Care Research Forum Committee Member 2012-

·        Northern Ireland Kidney Patient Association Committee Member 2012-

·        Scientific Progamme Committee Member - European Dialysis and Transplant Nurses Association (EDTNA) 2011-

·        International Scientific Advisory Panel member, RCN annual international nursing research conference 2009-

·        Committee Member of User and Carer Renal Group with South Bank University 2014-

·        Member of Renal Research Nurse Leaders Meeting 2015-

·        Module lead for 3 post graduate renal modules 2013-

·        Quality Gender Initiative Mentor (Feb 2015- ) Member

·        SWAN: Research Internship Scheme – Co Lead 2012-

·        Committee Member – School Research Ethics Committee 2015-

·        Committee Member - Teaching Excellence Student Support Group 2015-

·        Grant Reviewer for The NIHR Evaluation, Trials and Studies Coordinating Centre (NETSCC), based at the University of Southampton which manages evaluation research programmes and activities for the NIHR.



Recently Completed Research

  • Phair, G, Agus, A, Brazil, K, Burns, A, Hallahan S, Normand,C, Roderick,P, Maxwell, AP, Yaqoob, MM, Noble, H (2018). Healthcare use, costs and quality of life in patients with end-stage kidney disease receiving conservative management: results from a multi-centre observational study. In Press
  • Jawoniyi O, Gormley K, McGleenan E, Noble HR (2018). Organ Donation and Transplantation: Awareness and Roles of Healthcare Professionals – A systematic Literature Review. Journal of Clinical Nursing. Mar;27(5-6)
  • Madkhali, N. A., Santin, O., Noble, H. & Reid, J. (2017) Understanding Breast Health Awareness in the Kingdom of Saudi Arabia: A Systematic Review of the Literature. World Journal of Nursing Sciences. 3, 1: 19-32
  • Noble, H, Brazil, K, Burns, A, Hallahan S, Normand,C, Roderick,P, Maxwell, AP, Yaqoob, MM Clinician views of patient decisional conflict when deciding between dialysis or conservative management: qualitative findings from the PAlliative Care in chronic Kidney diSease’ (PACKS) study. Palliative Medicine, 2017 Apr 1:269216317704625. doi: 10.1177/0269216317704625. [Epub ahead of print]
  • O'Halloran, P., Noble, H., Brazil, K., Fogarty, D., Shields, J., Brown, J., Clarke, M. (2016). Protocol: Advance Care Planning with Older Patients who Have End-stage Kidney Disease - Feasibility of a Deferred Entry Randomised Controlled Trial Incorporating a Mixed Methods Process Evaluation. Palliative Medicine, 30(6), NP66. [MTE3]. 10.1177/0269216316646056
  • Noble HR, Shields JS, Brown J, Maxwell AP, Fogarty, DG (2015) An appraisal of end-of-life care in persons with Chronic Kidney Disease dying in hospital renal units. Journal of Renal Nursing. Article first published online: 19 NOV 2014 DOI: 10.1111/jorc.12097http://onlinelibrary.wiley.com/doi/10.1111/jorc.12097/abstrac
  • Noble H, Porter S & Price J (2014) The challenge to health professionals when carers resist truth-telling at the end of life: a qualitative secondary analysis. Journal of Clinical Nursing. IF:  ISI Journal Citation Reports © Ranking: 2012: 21/104 (Nursing (Social Science)); 25/106 (Nursing (Science)) http://www.ncbi.nlm.nih.gov/pubmed/24850420

  • McIlfatrick, S (PI)., Hasson, F., McLaughlin, D., Johnston, G., Rutherford, L., Noble, H (co-investigator) and Kelly, S (2012-2013). Exploring public awareness of palliative and end-of-life care and attitudes to death and dying in Northern Ireland: a pilot study HSC R&D Division

  • Noble H (2012-2013). Preparing for ‘PACKS’. Florence Nightingale Association
  • Noble, H (Chief Investigator) Fogarty, D, Shields, J. Crowe, L and Brown, J (2012-2013). Exploring renal deaths in Northern Ireland and the views of carers. GAIN funding.
  • Thomas, N. Jones, J. Noble, H. Chamney, M (2011-2102) Establishing a Patient and Carer Advisory Group for the Kidney Research and Education Initiative. British Kidney Patient Association.
  • Fogarty, D (PI), Shields, J. Noble, H. and Savage G (2011-2012). Healthcare planning in advanced Chronic Kidney Disease. Centre for Health Improvement – Queens University Belfast


Currently Funded Research Projects

  • Kelly, D, Reid, J, Noble, H (2018-) (Co-investigator) Strengthening the future role of Executive Nurse Directors: a UK study.

  • Noble, H Matthews, M (2017-2018) A Pilot Study to Examine Perceived Benefits of Reflexology Undergoing Hospital Based Haemodialysis (PI).

  • O’Hallrahan, P, Brazil, K, Cardwell C, Clarke, M, Noble, H. (2016-2018). Advance care planning with patients who have chronic kidney disease: A mixed methods feasibility study incorporating a deferred entry RCT. Dunhill Charity (Co-investigator)https://www.clinicaltrials.gov/ct2/show/NCT02631200?term=acredit&rank=1

  • Reid, J, Noble, H, Maxwell, P (2016-2018). Establishing a clinical phenotype for cachexia in chronic kidney disease HSC R&D Office, Northern ireland. (Co-investigator)


Graduate Supervision outside QUB

  • Carmela Arteaga Jorda – (Category B Supervisor): The concept of Self management and the Expert Patient Programme– Expected to finish 2018 – City University London.



Postregistration modules:

Module Leader

  • DNP 9009 - Doctorate in Nursing Practice - Independant Module.
  • HSN3076 - Nephrology Introductory Module
  • HSN3074 - Renal Nursing
  • HSN3075 - Renal Replacement Therapies (RRT)


External Examiner

  • University of Hertfordshire & Lincoln University College (Malaysia)
  • BSc (Hons) International Nursing programme (Malaysia)
  • BSc Contemporary Nursing
  • MSc Contemporary Nursing

Fingerprint Dive into the research topics where Helen Noble is active. These topic labels come from the works of this person. Together they form a unique fingerprint.

  • 68 Similar Profiles
Palliative Care Medicine & Life Sciences
Chronic Kidney Failure Medicine & Life Sciences
Caregivers Medicine & Life Sciences
Chronic Renal Insufficiency Medicine & Life Sciences
Kidney Medicine & Life Sciences
Dialysis Medicine & Life Sciences
Saudi Arabia Medicine & Life Sciences
Art Medicine & Life Sciences

Network Recent external collaboration on country level. Dive into details by clicking on the dots.

Projects 2011 2017

Selected Research Output 2000 2019

29 Citations (Scopus)

Public awareness and attitudes toward palliative care in Northern Ireland

McIlfatrick, S., Hasson, F., McLaughlin, D., Johnston, G., Roulston, A., Rutherford, L., Noble, H., Kelly, S., Craig, A. & Kernohan, W. G., 17 Sep 2013, In : BMC palliative care. 12, 1, 7 p., BMC Palliative Care. IF 1.78 Q1.

Research output: Contribution to journalArticle

Open Access
Northern Ireland
Palliative Care
Terminal Care
Health Services
27 Citations (Scopus)

Exploring public awareness and perceptions of palliative care: a qualitative study

McIlfatrick, S., Noble, H., McCorry, N. K., Roulston, A., Hasson, F., McLaughlin, D., Johnston, G., Rutherford, L., Payne, C., Kernohan, G., Kelly, S. & Craig, A., Mar 2014, In : Palliative Medicine. 28, 3, p. 273-280 8 p.

Research output: Contribution to journalArticle

Open Access
Palliative Care
Public Health Practice
Hospice Care

Caring for people who are dying on renal wards: a retrospective study.

Noble, H. & Rees, K., 2006, In : EDTNA-ERCA Journal. 32(2), p. 89-92 4 p.

Research output: Contribution to journalArticle

Experiences of patients called to hospital for a renal transplant.

Noble, H., 2000, In : EDTNA-ERCA Journal. 26(1), 1, p. 22-25 4 p.

Research output: Contribution to journalArticle

Gone but not forgotten: A service to remember renal patients who have died

Nulsen, R. & Noble, H., 2009, In : End of Life Care. 3 (2), p. 56-62 7 p.

Research output: Contribution to journalArticle

Doing qualitative research as a practitioner: Processes, issues and challenges

Meyer, J., Noble, H., Kilbride, C., Holman, C. & Bridges, J., 2010, In : Malaysian Journal of Qualitative Research. 2 (2), p. 36-55 20 p.

Research output: Contribution to journalArticle

7 Citations (Scopus)

A literature review of end-stage renal disease and cachexia: Understanding experience to inform evidence-based healthcare

Reid, J., Noble, H. R., Porter, S., Shields, J. S. & Maxwell, A. P., Mar 2013, In : Journal of Renal Care. 39, 1, p. 47-51

Research output: Contribution to journalArticle

Evidence-Based Practice
Chronic Kidney Failure
Patient-Centered Care

Developing a Renal Supportive Care Service for patients opting not to dialyse

Noble, H., 2007, In : End of Life Care. 1 (3), p. 51-55 5 p.

Research output: Contribution to journalArticle

Survival and Disease Trajectories

Noble, H., Jan 2011, Conservative Management in Advanced Kidney Disease: A guide to clinical practice.. Jenkins, K., Bennett, L. & Mooi Ho, T. (eds.). EDTNA, p. 21-35 15 p.

Research output: Chapter in Book/Report/Conference proceedingChapter

Patient experience of dialysis refusal or withdrawal – a review of the literature

Noble, H., 2008, In : Journal of renal care. 34 (2), p. 94-100 7 p.

Research output: Contribution to journalArticle

17 Citations (Scopus)

Experiences of carers supporting dying renal patients managed without dialysis

Noble, H., Kelly, D. & Hudson, P., Aug 2013, In : Journal of Advanced Nursing. 69, 8, p. 1829-39 11 p.

Research output: Contribution to journalArticle

Nursing Theory
Chronic Renal Insufficiency
23 Citations (Scopus)

Factors influencing patients with stage 5 chronic kidney disease to opt for conservative management: a practitioner research study

Johnston, S. & Noble, H., May 2012, In : Journal of Clinical Nursing. 21, 9-10, p. 1215-1222 8 p., Journal of Clinical Nursing IF: 1.255 ISI Journal Citation Reports © Ranking: 2014: 31/109 (Nursing (Social Science)).

Research output: Contribution to journalArticle

Chronic Renal Insufficiency
Nurse Clinicians
Decision Making


£1500 Funding from Research and Enterprise, QUB

Helen Noble (Recipient), 11 Oct 2017

Prize: Other distinction

Financial Management
Administrative Personnel
Delivery of Health Care

£2500 from HSC R&D Division

Helen Noble (Recipient), 24 Jan 2018

Prize: Other distinction

£2500 funding from NI Kidney Research Fund

Helen Noble (Recipient), 15 Jan 2018

Prize: Other distinction

£2500 funding from the Renal Unit Fund

Helen Noble (Recipient), 15 Jan 2018

Prize: Other distinction


Activities 1999 2020

RCN FOUNDATION Professional Bursary Scheme

Helen Noble (Recipient)
01 Jan 202031 Dec 2020

Activity: Other activity typesOther

47th EDTNA/ERCA Conference: Quality of Life, decision making, cognition, performance and frailty in conservative management

Helen Noble (Presenter)
17 Sep 2018

Activity: Talk or presentation typesInvited talk

All Ireland Institute for Hospice and Palliative Care (AIIHPC) - Palliative Care Research Network (External organisation)

Helen Noble (Advisor)
01 Feb 2018

Activity: Membership typesMembership of network

3rd World Conference on Qualitative Research - Scientific Programme Committee (Event)

Helen Noble (Advisor)
17 Oct 201819 Oct 2018

Activity: Membership typesMembership of national or international committees and working groups

47th EDTNA/ERCA Conference: Developing your Renal Research Project

Helen Noble (Invited speaker), Claire Carswell (Contributor)
17 Sep 2018

Activity: Talk or presentation typesInvited talk


British Kidney Patient Association Patient and Carer Leaflets

Helen Noble (Participant)

Impact: Societial Impact, Quality of Life Impact, Public Service Impact

The Conversation story

Helen Noble (Participant)

Impact: Public Service Impact