Research output per year
Research output per year
- 43 results
Search results
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2025
Bridging the gap: challenging lung infections and clinical trial development in cystic fibrosis
Downey, D. G., Simmonds, N. J., van Koningsbruggen-Rietschel, S., Bend, J., Dunlevy, F., Hill, K. & Dupont, L., Jan 2025, In: Journal of Cystic Fibrosis. 24, 1, p. 79-82 4 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile4 Downloads (Pure) -
Guidance for chest-CT in children and adults with cystic fibrosis: a European perspective
Fayon, M., Hill, K., Waldron, M., Messore, B., Riberi, L., Svedberg, M., Lammertyn, E., Fustik, S., Gramegna, A., Stahl, M., Kerpel-Fronius, A., Balbi, M., Ciet, P., Chassagnon, G., Ferrero, C., Burgel, P.-R., Sutharsan, S., Opitz, M., Andrinopoulou, E.-R. & Dournes, G. & 4 others, , May 2025, In: Respiratory Medicine. 241, 14 p., 108076.Research output: Contribution to journal › Review article › peer-review
Open AccessFile -
2024
A pan-European perspective: guidance for the use of chest-CT in children and adults with cystic fibrosis
Fayon, M., Hill, K., Waldron, M., Messore, B., Riberi, L., Svedburg, M., Lammertyn, E., Fustik, S., Gramegna, A., Stahl, M., Kerpel-Fronius, A., Balbi, M., Ciet, P., Chassagnon, G., Burgel, P., Sutharsan, S., Opitz, M., Andrinopolou, E., Dournes, G. & Maher, M. & 3 others, , 26 Sept 2024, In: Journal of Cystic Fibrosis. 23, Supplement 2, p. S94 1 p., 168.Research output: Contribution to journal › Meeting abstract › peer-review
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Chest computed tomography imaging practices of people with cystic fibrosis: insights from radiologists, radiographers, and pulmonologists
ECFS Clinical Trials Network, 30 Jun 2024, In: Journal of Cystic Fibrosis. 23, Supplement 1, 1 p., P019.Research output: Contribution to journal › Meeting abstract › peer-review
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ECFS Clinical Trials Network annual report 2023
Dunlevy, F., Dupont, L. & Hill, K., 29 May 2024, European Cystic Fibrosis Society. 19 p.Research output: Book/Report › Commissioned report
Open AccessFile73 Downloads (Pure) -
ECFS CTN measurement of body mass index
Hill, K., Sermet, I., Smith, C., Snowball, J., Owen, E., Munck, A. M., Van Biervliet, S., Asseiceira, I., Duckers, J. & van Steenbergen, E., 14 Jan 2024, 7 p. ECFS Education Platform : European Cystic Fibrosis Society.Research output: Other contribution › Protocol › peer-review
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ECFS CTN SOP sputum induction for expectorating older children and adults
Hill, K., Burgen, O., Dautry, M., Pleskova, J., Chelmerova, A. & Sermet-Gaudelus, I., 17 Apr 2024, 24 p. European Cystic Fibrosis Society.Research output: Other contribution › Protocol › peer-review
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E-learning within the European Cystic Fibrosis society - a multidisciplinary cross-sectional survey
Smith, C., Chadwick, H. K., Hill, K., Peckham, D. G. & European Cystic Fibrosis Society Education Committee, Sept 2024, In: Journal of Cystic Fibrosis. 23, 5, p. 1020-1023 24 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile18 Downloads (Pure) -
Poster abstract: E-learning within the European Cystic Fibrosis Society – a multidisciplinary cross sectional survey
Smith, C., Chadwick, H., Shaw, N., Farinha, C., Southern, K. W., Landau, E. E. C., Mantin, H., Mei-Zahav, M., Havermans, T., Borawska-Kowalczyk, U., MacDuff, N., Bentley, S., Stanford, G., Declercq, D., Urquhart, D. S., Radtke, T., De Wachter, E., Hill, K., Dunlevy, F. & Reilly, C. & 3 others, , 30 Jun 2024, In: Journal of Cystic Fibrosis. 23, Supplement 1, p. S97 1 p., P097.Research output: Contribution to journal › Meeting abstract › peer-review
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Scanning the landscape: ECFS Clinical Trial Network: CT imaging monitoring strategies
Fayon, M., Hill, K., Messore, B., Tiddens, H., Ciet, P., Maher, M., Waldron, M., Fustik, S. & Sermet, I., 07 Jun 2024, In: Journal of Cystic Fibrosis. 23, Supplement 1, 1 p., WS11.05.Research output: Contribution to journal › Meeting abstract › peer-review
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Submission of comments on 'Reflection paper on establishing efficacy based on single arm trials submitted as pivotal evidence in a marketing authorisation' (EMA/CHMP/564424/2021)
Downey, D., Hill, K. & Dunlevy, F., 23 Sept 2024, 7 p. European Medicines Agency.Research output: Other contribution
Open AccessFile7 Downloads (Pure) -
2023
ECFS Clinical Trials Network annual report 2022
Downey, D., Dunlevy, F., Hill, K., Bulteel, V., Verbrugge, A. & Sermet-Gaudelus, I., 08 Nov 2023, European Cystic Fibrosis Society. 39 p.Research output: Book/Report › Other report
Open AccessFile19 Downloads (Pure) -
ECFS CTN measurement of height standard operating procedure
Hill, K., Sermet-Gaudelus, I., Smith, C., Snowball, J., Owen, E., Munck, A. M., Van Biervliet, S., Asseiceira, I., Duckers, J., McLeese, R. & van Steenbergen, E., 01 Sept 2023, 7 p. ECFS Education ePlatform : European Cystic Fibrosis Society.Research output: Other contribution › Protocol › peer-review
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ECFS CTN measurement of weight standard operating procedure
Hill, K., Sermet, I., McLeese, R., Smith, C., Snowball, J., Owen, E., Munck, A. M., Van Biervliet, S., Asseiceira, I., Duckers, J. & van Steenbergen, E., 01 Sept 2023, 5 p. ECFS Education ePlatform : European Cystic Fibrosis Society.Research output: Other contribution › Protocol › peer-review
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ECFS syllabuses for the multidisciplinary team and wider field: a guide for comprehensive education
Smith, C., Chadwick, H. K., Farinha, C., Southern, K. W., Havermans, T., Landau, E., Patel, S., Borawska-Kowalczyk, U., MacDuff, N., Shaw, N., Bentley, S., Declercq, D., Wagner, M., Stanford, G., Urquhart, D. S., Radtke, T., Williams, C. A., De Wachter, E., Hill, K. & Dunlevy, F. & 1 others, , 22 May 2023, (Accepted).Research output: Contribution to conference › Poster › peer-review
Open AccessFile19 Downloads (Pure) -
Hear my voice: research by and with children with cystic fibrosis
Caldani, S., Devouche, E., Cappe, E., Sermet, I. & Hill, K., 09 Jun 2023, In: Journal of Cystic Fibrosis. 22, Supplement 2, p. S40 1 p., EPS.01.Research output: Contribution to journal › Meeting abstract › peer-review
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Other bacteria
Hayes, K., Skov, M. & Pressler, T., 26 Apr 2023, (Accepted) Inflammation and infection in cystic fibrosis. European Cystic Fibrosis SocietyResearch output: Chapter in Book/Report/Conference proceeding › Chapter (peer-reviewed) › peer-review
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Standardising European imaging practice: European Cystic Fibrosis Society Clinical Trial Network & European Respiratory Society
Tiddens, H., Fayon, M., Messore, B., Ciet, P., Maher, M., Waldron, M., Sermet, I. & Hill, K., 04 Nov 2023.Research output: Contribution to conference › Poster › peer-review
Open AccessFile23 Downloads (Pure) -
2022
ECFS Clinical Trials Network annual report 2021
Downey, D., Dunlevy, F., Hill, K., Bulteel, V., Verbrugge, A. & Sermet-Gaudelus, I., 31 Aug 2022, European Cystic Fibrosis Society. 20 p.Research output: Book/Report › Other report
Open AccessFile20 Downloads (Pure) -
Isolation, cultivation, and application of primary respiratory epithelial cells obtained by nasal brushing, polyp samples, or lung explants
Golec, A., Pranke, I., Scuderi, P., Hayes, K., Dreano, E., Dunlevy, F., Hatton, A., Downey, D. G., Galietta, L. & Sermet, I., 17 Jun 2022, In: STAR Protocols. 3, 2, 33 p., 101419.Research output: Contribution to journal › Article › peer-review
Open AccessFile7 Citations (Scopus)138 Downloads (Pure) -
Writing with patients, for patients: co-creation of a cystic-fibrosis plain language glossary
Hayes, K., Dunlevy, F., Bulteel, V., Lammertyn, E. & de Keyser, H., 06 Jun 2022, In: Journal of Cystic Fibrosis. p. 1 S75.Research output: Contribution to journal › Meeting abstract › peer-review
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2021
"Il faut continuer à poser des questions" patient reported outcome measures in cystic fibrosis: An anthropological perspective: An anthropological perspective
European Cystic Fibrosis Society-Clinical Trials Network Patient Advisory Group, 27 Feb 2021, (Early online date) In: Journal of Cystic Fibrosis. 6 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile5 Citations (Scopus)165 Downloads (Pure) -
Impact of the SARS-CoV-2 pandemic on clinical trials in the ECFS-CTN during 2020
van Koningsbruggen-Rietschel, S., Dunlevy, F., Bulteel, V., Hayes, K., Verbrugge, A. & Downey, D., 11 Jun 2021.Research output: Contribution to conference › Abstract › peer-review
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Inflammation biomarkers in sputum for clinical trials in cystic fibrosis: current understanding and gaps in knowledge
Lepissier, A., Addy, C., Hayes, K., Noel, S., Bui, S., Burgel, P.-R., Dupont, L., Eickmeier, O., Fayon, M., Leal, T., Lopes, C., Downey, D. & Sermet-Gaudelus, I., 10 Nov 2021, (Early online date) In: Journal of Cystic Fibrosis. 68 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile14 Citations (Scopus)245 Downloads (Pure) -
Isolation, cultivation and application of primary respiratory epithelial cells obtained by nasal brushing, polyp sample or lung explants
Hayes, K., Golec, A., Pranke, I., Hatton, A., Drano, E. & Sermet-Gaudelus, I., 04 May 2021, 33 p. European Cystic Fibrosis Society.Research output: Other contribution › Protocol › peer-review
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Modulators of CFTR. Updates on clinical development and future directions
Bardin, E. E., Pastor, A., Semeraro, M., Golec, A., Hayes, K., Chevalier, B., Berhal, F., Prestat, G., Hintzpeter, A., Gravier-Pelletier, C., Pranke, I. & Sermet-Gaudelus, I., Mar 2021, In: European Journal of Medicinal Chemistry. 213, 15 p., 113195.Research output: Contribution to journal › Article › peer-review
Open AccessFile41 Citations (Scopus)62 Downloads (Pure) -
Patient Co-design: development of a novel disease-specific PROM
Hayes, K., Lammertyn, E., de Keyser, H., Havermans, T., Chansard, A., Coucke, R., Bend, J. & Sermet-Gaudelus, I., Sept 2021, (Accepted).Research output: Contribution to conference › Poster › peer-review
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Protecting Clinical Trials in Cystic Fibrosis; COVID-19 Mitigation Measures Crowd Sourced from the European Cystic Fibrosis Society Clinical Trials Network
van Koningsbruggen-Rietschel, S., Dunlevy, F., Bulteel, V., Hayes, K., Verbrugge, A., Janssens, H., Dufeu, N., Simmonds, N. J., Dupont, L. J. & Downey, D. G., 28 Aug 2021, (Early online date) In: Trials. p. 1 11 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile44 Downloads (Pure) -
Protecting clinical trials in cystic fibrosis during the SARS-CoV-2 pandemic: risks and mitigation measures
van Koningsbruggen-Rietschel, S., Dunlevy, F., Bulteel, V., Hayes, K., Verbrugge, A., Janssens, H. M., Dufeu, N., Simmonds, N. J., Dupont, L. J. & Downey, D. G., 28 Aug 2021, In: Trials. 22, 578.Research output: Contribution to journal › Article › peer-review
Open AccessFile6 Citations (Scopus)60 Downloads (Pure) -
Sweat Chloride Testing and Nasal Potential Difference (NPD) Are Primary Outcome Parameters in Treatment with Cystic Fibrosis Transmembrane Conductance Regulator (CFTR) Modulators
Sermet-Gaudelus, I., Nguyen-Khoa, T., Hatton, A., Hayes, K. & Pranke, I., 27 Jul 2021, (Early online date) In: Journal of Personalized Medicine. 11, 8, p. e729Research output: Contribution to journal › Article › peer-review
Open AccessFile16 Citations (Scopus)91 Downloads (Pure) -
Sweat Induction and Collection Macroduct Advanced SOP
Nguyen-Khoa, T., Sermet-Gaudelus, I., Southern, K., De Wachter, E. & Hayes, K., 08 Dec 2021, 23 p. ECFS CTN.Research output: Other contribution › Protocol › peer-review
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2020
A critical review of definitions used to describe Pseudomonas aeruginosa microbiological status in patients with cystic fibrosis for application in clinical trials
ECFS-CTN Microbiology Group, Jan 2020, In: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society. 19, 1, p. 52-67 16 p.Research output: Contribution to journal › Article › peer-review
10 Citations (Scopus) -
A QUALITATIVE STUDY OF PATIENTS WITH CYSTIC FIBROSIS AND THEIR CAREGIVERS
Hayes, K., Sermet-Gaudelus, I., Bontemps, V., de Carli, P., Chansard, A., Lammertyn, E. & de Keyser, H., 2020, p. 221.Research output: Contribution to conference › Abstract › peer-review
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CF medicines in children
Semeraro, M., Hayes, K. & Sermet-Gaudelus, I., 2020, Optimizing pharmaceutical care in cystic fibrosis. Bentley, S., Castellani, C., Peckham, D. & Shaw, N. (eds.). Denmark: European Cystic Fibrosis Society, p. 139-152Research output: Chapter in Book/Report/Conference proceeding › Chapter (peer-reviewed) › peer-review
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ePS5.01 Patient reported outcome measures used in clinical practice: an ECFS CTN and CF Europe survey
Hayes, K., Lammertyn, E., de Carli, P. & Sermet-Gaudelus, I., 2020, p. S49.Research output: Contribution to conference › Poster › peer-review
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WS04.4 Guidance on the use of sputum biomarkers to monitor treatment response and act as trial outcomes in cystic fibrosis
Lepissier, A., Addy, C., Downey, D., Hayes, K. & Sermet, I., 01 Jun 2020, In: Journal of Cystic Fibrosis. 19, p. S7Research output: Contribution to journal › Meeting abstract › peer-review
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2018
ECFS CTN Sweat Induction and Collection SOP
Jill van Dalfsen, Edith Zemanick & Carol Kopecky, 24 May 2018, 25 p.Research output: Other contribution › Protocol › peer-review
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Standardized Measurement of Nasal Membrane Transepithelial Potential Difference (NPD)
Hayes, K., George Solomon & Inez Bronsveld, 13 Sept 2018, In: Journal of visualized experiments : JoVE. 139, e57006Research output: Contribution to journal › Article › peer-review
Open AccessFile28 Citations (Scopus)304 Downloads (Pure) -
2017
Comparing accelerometer, pedometer and a questionnaire for measuring physical activity in bronchiectasis: a validity and feasibility study
Bradley, J. M., O'Neill, B., McDonough, S. M., Wilson, J. J., Bradbury, I., Hayes, K., Kirk, A., Kent, L., Cosgrove, D. & Tully, M. A., 14 Jan 2017, In: Respiratory Research. 18, 16, p. 1-10 10 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile44 Citations (Scopus)546 Downloads (Pure) -
2016
Applying the Transtheoretical Model to Physical Activity Behavior in Individuals With Non-Cystic Fibrosis Bronchiectasis
Bradley, J. M., Wilson, J. J., Kirk, A., Hayes, K., Bradbury, I., McDonough, S., Tully, M. A. & O'Neill, B., 01 Jan 2016, In: Respiratory Care. 61, 1, p. 68-77 10 p.Research output: Contribution to journal › Article › peer-review
9 Citations (Scopus) -
WS18.4 Intestinal current measurement as outcome marker for clinical trials: the ECFS CTN certification process and central reading core facility
de Jonge, H., Bronsveld, I., Melotti, P., van Koningsbruggen-Rietschel, S., Sermet-Gaudelus, I., Hayes, K. & Derichs, N., 2016, p. S30.Research output: Contribution to conference › Abstract › peer-review
Open Access -
2015
Sedentary behaviour and physical activity in bronchiectasis: a cross-sectional study
Bradley, J., Wilson, J., Hayes, K., Kent, L., McDonough, S., Tully, M., Bradbury, I., Kirk, A., Cosgrove, D., Convery, R., Kelly, M., Elborn, S. & O'Neill, B., 13 May 2015, In: BMC Pulmonary Medicine. 15, 22 p., 61.Research output: Contribution to journal › Article › peer-review
Open AccessFile38 Citations (Scopus)391 Downloads (Pure) -
2014
How low can we go: how many days of monitoring reliably predict 7-day physical activity in patients with bronchiectasis?
Wilson, J., Hayes, K., McDonough, S., Tully, M., Bradbury, I. & O'Neill, B., 2014.Research output: Contribution to conference › Paper › peer-review