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Stephanie Crawford
20232025

Research activity per year

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Research Focus

The Island of Ireland’s death literacy has been explored and understood through my PhD. With an ever-increasing ageing population and increased strain on palliative and end-of-life care services, such research is vital. To address such demands, various public health approaches to palliative care have been devised across the island of Ireland. However, with the lack of an accepted outcome measure, their effectiveness was largely uncertain. This PhD adapted a tool to measure death literacy (Death Literacy Index, DLI) across the island of Ireland. Using cognitive interviews with a think-aloud methodology, the Death Literacy Index-Island of Ireland (DLI-IRE) was developed. The DLI-IRE was administered through a population survey and psychometrically validated. Population-level benchmarks were calculated, and predictors of death literacy were explored. An online workshop with death literacy experts across the island, produced a Theory of Change model and five priority recommendations for enhancing death literacy in communities across the island of Ireland.  This PhD research provides the island of Ireland with its first culturally validated tool to assess death literacy and to evaluate and improve the provision and quality of palliative and end of life care services.

Expertise related to UN Sustainable Development Goals

In 2015, UN member states agreed to 17 global Sustainable Development Goals (SDGs) to end poverty, protect the planet and ensure prosperity for all. This person’s work contributes towards the following SDG(s):

  1. SDG 3 - Good Health and Well-being
    SDG 3 Good Health and Well-being
  2. SDG 10 - Reduced Inequalities
    SDG 10 Reduced Inequalities
  3. SDG 11 - Sustainable Cities and Communities
    SDG 11 Sustainable Cities and Communities

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