Personal profile
Research Focus
The Island of Ireland’s death literacy has been explored and understood through my PhD. With an ever-increasing ageing population and increased strain on palliative and end-of-life care services, such research is vital. To address such demands, various public health approaches to palliative care have been devised across the island of Ireland. However, with the lack of an accepted outcome measure, their effectiveness was largely uncertain. This PhD adapted a tool to measure death literacy (Death Literacy Index, DLI) across the island of Ireland. Using cognitive interviews with a think-aloud methodology, the Death Literacy Index-Island of Ireland (DLI-IRE) was developed. The DLI-IRE was administered through a population survey and psychometrically validated. Population-level benchmarks were calculated, and predictors of death literacy were explored. An online workshop with death literacy experts across the island, produced a Theory of Change model and five priority recommendations for enhancing death literacy in communities across the island of Ireland. This PhD research provides the island of Ireland with its first culturally validated tool to assess death literacy and to evaluate and improve the provision and quality of palliative and end of life care services.
Expertise related to UN Sustainable Development Goals
In 2015, UN member states agreed to 17 global Sustainable Development Goals (SDGs) to end poverty, protect the planet and ensure prosperity for all. This person’s work contributes towards the following SDG(s):
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SDG 3 Good Health and Well-being
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SDG 10 Reduced Inequalities
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SDG 11 Sustainable Cities and Communities
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Collaborations and top research areas from the last five years
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Compassionate communities position paper. fostering compassionate communities: a call to transform caregiving, dying, death and grieving on the island of Ireland
Graham-Wisener, L., Crawford, S. & Crowe, A., 14 Jan 2025, The All Ireland Institute of Hospice and Palliative Care. 40 p.Research output: Book/Report › Commissioned report
Open AccessFile516 Downloads (Pure) -
The Death Literacy Index- Island of Ireland (DLI-IRE)
Crawford, S., Groarke, J., Dempster, M. & Graham-Wisener, L., 09 Feb 2025, In: BMJ Supportive and Palliative Care. 15, Suppl 1, 1 p., A3.Research output: Contribution to journal › Meeting abstract
Open Access -
Investigating the appropriateness of the Death Literacy Index (DLI) to the population of Ireland
Crawford, S., Groarke, J., Dempster, M. & Graham-Wisener, L., 14 Nov 2024, (Unpublished). 1 p.Research output: Contribution to conference › Poster
File3 Downloads (Pure) -
Investigating the appropriateness of the Death Literacy Index (DLI) to the population of Ireland
Crawford, S., Groarke, J., Dempster, M. & Graham-Wisener, L., 01 Jan 2024, In: BMJ Supportive and Palliative Care. 14, Suppl 1, 1 p., A3.Research output: Contribution to journal › Meeting abstract › peer-review
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Investigating the appropriateness of the Death Literacy Index (DLI) to the population of Ireland
Crawford, S., Dempster, M., Groarke, J. & Graham-Wisener, L., 07 Dec 2023.Research output: Contribution to conference › Poster › peer-review
Activities
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Enhancing Death Literacy in Communities across the Island of Ireland: A Theory of Change Model and Recommendations
Crawford, S. (Advisor)
20 Nov 2025Activity: Talk or presentation types › Invited or keynote talk at national or international conference
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Refining the Death Literacy Index for the Island of Ireland
Crawford, S. (Presenter)
30 May 2025Activity: Talk or presentation types › Oral presentation
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EAPC 19th World Congress in Helsinki
Crawford, S. (Presenter)
29 May 2025 → 31 May 2025Activity: Participating in or organising an event types › Participation in conference
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Understanding Death Literacy in our Welsh Context
Crawford, S. (Presenter), Graham-Wisener, L. (Presenter) & Edwards , M. (Chair)
23 May 2025Activity: Talk or presentation types › Invited talk
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Enhancing Death Literacy in Communities across the Island of Ireland: A Theory of Change Model and Recommendations
Crawford, S. (Presenter) & Graham-Wisener, L. (Presenter)
25 Feb 2025Activity: Talk or presentation types › Oral presentation
Press/Media
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Greater knowledge of palliative care in Republic
09/09/2025
1 item of Media coverage
Press/Media: Research
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Better understanding of palliative care south of the Border, survey finds
08/09/2025
1 Media contribution
Press/Media: Research
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Study reveals Republic of Ireland has higher level of ‘death literacy’ than NI
08/09/2025
1 item of Media coverage
Press/Media: Research
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Better understanding of palliative care south of the border – all-island survey
08/09/2025
1 Media contribution
Press/Media: Research
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Better understanding of palliative care south of the Border, survey finds
08/09/2025
1 item of Media coverage
Press/Media: Research