A cross-sectional survey of services for young adults with life-limiting conditions making the transition from children’s to adult services in Ireland

Research output: Contribution to journalArticle

Abstract

Background: Increasing numbers of young adults with life-limiting conditions are living into adulthood and consequently making the transition from children’s to adult services. A poorly planned transition is associated with adverse outcomes such as non-adherence to treatment and loss to follow-up, together with negative social and emotional outcomes, However, there is little descriptive data on how organisation are currently managing transition.

Aim: To obtain an overview of organisational approaches to transition on the island of Ireland, and to explore important organisational factors that may influence the effectiveness of the process.

Methods: A cross-sectional questionnaire survey. One of the four Health Services Executive areas in the Republic of Ireland and the whole of Northern Ireland. Participants were service providers in statutory and non-statutory organisations providing transition services to young adults with life-limiting conditions.

Results: The survey was distributed to 55 organisations. The overall response rate was 29/55 (53%). The approach to transition most commonly used focused on interagency communication and collaboration. Key factors in an effective transition were reported as: early commencement; effective communication between the young adult, their family, and services; the availability of appropriate adult services; and effective preparation through collaboration with the young adult and their family. However, implementation of these processes was inconsistent.

Conclusions: The findings demonstrate that caring for young adults with life-limiting conditions presents a considerable challenge to organisations and that transition from children’s to adult services is an important part of this challenge.
LanguageEnglish
JournalIrish journal of medical science
Early online date04 Jul 2019
DOIs
Publication statusEarly online date - 04 Jul 2019

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Ireland
Young Adult
Cross-Sectional Studies
Organizations
Communication
Northern Ireland
Social Conditions
Islands
Surveys and Questionnaires
Therapeutics

Keywords

  • Transition
  • Life-limiting conditions
  • TASYL study

Cite this

@article{9673e1692f344609834a34dadf82ab5c,
title = "A cross-sectional survey of services for young adults with life-limiting conditions making the transition from children’s to adult services in Ireland",
abstract = "Background: Increasing numbers of young adults with life-limiting conditions are living into adulthood and consequently making the transition from children’s to adult services. A poorly planned transition is associated with adverse outcomes such as non-adherence to treatment and loss to follow-up, together with negative social and emotional outcomes, However, there is little descriptive data on how organisation are currently managing transition.Aim: To obtain an overview of organisational approaches to transition on the island of Ireland, and to explore important organisational factors that may influence the effectiveness of the process.Methods: A cross-sectional questionnaire survey. One of the four Health Services Executive areas in the Republic of Ireland and the whole of Northern Ireland. Participants were service providers in statutory and non-statutory organisations providing transition services to young adults with life-limiting conditions. Results: The survey was distributed to 55 organisations. The overall response rate was 29/55 (53{\%}). The approach to transition most commonly used focused on interagency communication and collaboration. Key factors in an effective transition were reported as: early commencement; effective communication between the young adult, their family, and services; the availability of appropriate adult services; and effective preparation through collaboration with the young adult and their family. However, implementation of these processes was inconsistent.Conclusions: The findings demonstrate that caring for young adults with life-limiting conditions presents a considerable challenge to organisations and that transition from children’s to adult services is an important part of this challenge.",
keywords = "Transition, Life-limiting conditions, TASYL study",
author = "Helen Kerr and Jayne Price and Peter O'Halloran",
year = "2019",
month = "7",
day = "4",
doi = "10.1007/s11845-019-02054-z",
language = "English",
journal = "Irish journal of medical science",
issn = "0021-1265",
publisher = "Springer-Verlag London Ltd",

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N2 - Background: Increasing numbers of young adults with life-limiting conditions are living into adulthood and consequently making the transition from children’s to adult services. A poorly planned transition is associated with adverse outcomes such as non-adherence to treatment and loss to follow-up, together with negative social and emotional outcomes, However, there is little descriptive data on how organisation are currently managing transition.Aim: To obtain an overview of organisational approaches to transition on the island of Ireland, and to explore important organisational factors that may influence the effectiveness of the process.Methods: A cross-sectional questionnaire survey. One of the four Health Services Executive areas in the Republic of Ireland and the whole of Northern Ireland. Participants were service providers in statutory and non-statutory organisations providing transition services to young adults with life-limiting conditions. Results: The survey was distributed to 55 organisations. The overall response rate was 29/55 (53%). The approach to transition most commonly used focused on interagency communication and collaboration. Key factors in an effective transition were reported as: early commencement; effective communication between the young adult, their family, and services; the availability of appropriate adult services; and effective preparation through collaboration with the young adult and their family. However, implementation of these processes was inconsistent.Conclusions: The findings demonstrate that caring for young adults with life-limiting conditions presents a considerable challenge to organisations and that transition from children’s to adult services is an important part of this challenge.

AB - Background: Increasing numbers of young adults with life-limiting conditions are living into adulthood and consequently making the transition from children’s to adult services. A poorly planned transition is associated with adverse outcomes such as non-adherence to treatment and loss to follow-up, together with negative social and emotional outcomes, However, there is little descriptive data on how organisation are currently managing transition.Aim: To obtain an overview of organisational approaches to transition on the island of Ireland, and to explore important organisational factors that may influence the effectiveness of the process.Methods: A cross-sectional questionnaire survey. One of the four Health Services Executive areas in the Republic of Ireland and the whole of Northern Ireland. Participants were service providers in statutory and non-statutory organisations providing transition services to young adults with life-limiting conditions. Results: The survey was distributed to 55 organisations. The overall response rate was 29/55 (53%). The approach to transition most commonly used focused on interagency communication and collaboration. Key factors in an effective transition were reported as: early commencement; effective communication between the young adult, their family, and services; the availability of appropriate adult services; and effective preparation through collaboration with the young adult and their family. However, implementation of these processes was inconsistent.Conclusions: The findings demonstrate that caring for young adults with life-limiting conditions presents a considerable challenge to organisations and that transition from children’s to adult services is an important part of this challenge.

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