A refresh of the top 10 research priorities in cystic fibrosis

Nicola Jane Rowbotham*, Sherie Smith, Zoe C Elliott, Belinda Cupid, Lorna J Allen, Katherine Cowan, Lucy Allen, Alan Robert Smyth

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

14 Citations (Scopus)
11 Downloads (Pure)

Abstract

In 2018 we published the James Lind Alliance (JLA) top 10 priorities for clinical research in cystic fibrosis (CF), chosen jointly by the patient and clinical communities. These priorities have led to new research funding. To establish whether priorities have changed with novel modulator therapies, we undertook an online international update through a series of surveys and a workshop. Patients and clinicians (n=1417) chose the refreshed top 10 from 971 new research questions (suggested by patients and clinicians) and 15 questions from 2018. We are working with the international community to promote research based on these refreshed top 10 priorities.
Original languageEnglish
Pages (from-to)840-843
Number of pages4
JournalThorax
Volume78
Issue number8
Early online date07 Jun 2023
DOIs
Publication statusPublished - Aug 2023
Externally publishedYes

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