Bolivian health and social care professionals' experiences of decision-making in oncology and palliative care

Audrey Roulston, Tommy Haynes

Research output: Contribution to journalArticle

1 Citation (Scopus)
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Abstract

In the UK, end-of-life care strategies recommend patients and families are involved in decision making around treatment and care. In Bolivia, such strategies do not exist, and access to oncology services depends on finance, geography, education and culture. Compared to more developed countries, the delivery of oncology services in Latin America may result in a higher percentage of patients presenting with advanced incurable disease. The objective of this study was to explore decision-making experiences of health and social care professionals who cared for oncology and palliative care patients attending the Instituto Oncológico Nacional, Cochabamba (Bolivia). Patients were predominantly from the Quechua tradition, which has its own ethnic diversity, linguistic distinctions and economic systems. Qualitative data were collected during focus groups. Data analysis was conducted using Interpretative Phenomenological Analysis. Three interrelated themes emerged: (i) making sense of structures of experience and relationality; (ii) frustration with the system; and (iii) the challenges of promoting shared decision making. The study uncovered participants' lived experiences, emotions and perceptions of providing care for Quechua patients. There was evidence of structural inequalities, the marginalisation of Quechua patients and areas of concern that social workers might well be equipped to respond to, such as accessing finances for treatment/care, education and alleviating psychological or spiritual suffering.
Original languageEnglish
Pages (from-to)1277-1295
Number of pages19
JournalBritish Journal of Social Work
Volume45
Issue number4
Early online date06 Jan 2014
DOIs
Publication statusPublished - Jun 2015

Keywords

  • decision-making
  • Interpretative phenomenological analysis
  • Latin America
  • Oncology
  • Palliative Care

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    DARE conference - Decisions, assessment, risk and evidence in social work

    Audrey Roulston (Speaker)

    01 Jul 2014

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