Caregiving for the terminally ill: at what cost?

Samar M Aoun, Linda J Kristjanson, David C Currow, Peter L Hudson, Peter Hudson

Research output: Contribution to journalArticle

138 Citations (Scopus)

Abstract

This literature review exposes the nature and extent of physical and psychosocial morbidity and economic disadvantage, home palliative caregivers suffer as a direct result of their caregiving role. Research has demonstrated that caregivers providing support to individuals receiving palliative care report unmet needs for information, communication, service provision and support from health and community services. Three sets of challenges are highlighted in this literature review which help explain why the needs of home palliative caregivers are largely unmet: (i) barriers to seeking help; (ii) a dearth of research-based interventions focused on reducing the negative aspects of caregiving; and (iii) a number of impediments to effective policy and service development for family caregivers. Furthermore, invited submissions from caregivers echoed and confirmed the issues reported in the literature. Recommendations for enhancing caregiver support are outlined.
Original languageEnglish
Pages (from-to)551-5
Number of pages5
JournalPalliative Medicine
Volume19
Issue number7
Publication statusPublished - Oct 2005

Fingerprint

Terminally Ill
Caregivers
Costs and Cost Analysis
Information Services
Social Welfare
Policy Making
Palliative Care
Research
Health Services
Communication
Economics
Morbidity

Keywords

  • Health Services Needs and Demand
  • Terminal Care
  • Caregivers
  • Humans
  • Terminally Ill
  • Community Health Services
  • Health Services Accessibility

Cite this

Aoun, S. M., Kristjanson, L. J., Currow, D. C., Hudson, P. L., & Hudson, P. (2005). Caregiving for the terminally ill: at what cost? Palliative Medicine, 19(7), 551-5.
Aoun, Samar M ; Kristjanson, Linda J ; Currow, David C ; Hudson, Peter L ; Hudson, Peter. / Caregiving for the terminally ill : at what cost?. In: Palliative Medicine. 2005 ; Vol. 19, No. 7. pp. 551-5.
@article{ea49ee29972243f79e31ad95b62982c5,
title = "Caregiving for the terminally ill: at what cost?",
abstract = "This literature review exposes the nature and extent of physical and psychosocial morbidity and economic disadvantage, home palliative caregivers suffer as a direct result of their caregiving role. Research has demonstrated that caregivers providing support to individuals receiving palliative care report unmet needs for information, communication, service provision and support from health and community services. Three sets of challenges are highlighted in this literature review which help explain why the needs of home palliative caregivers are largely unmet: (i) barriers to seeking help; (ii) a dearth of research-based interventions focused on reducing the negative aspects of caregiving; and (iii) a number of impediments to effective policy and service development for family caregivers. Furthermore, invited submissions from caregivers echoed and confirmed the issues reported in the literature. Recommendations for enhancing caregiver support are outlined.",
keywords = "Health Services Needs and Demand, Terminal Care, Caregivers, Humans, Terminally Ill, Community Health Services, Health Services Accessibility",
author = "Aoun, {Samar M} and Kristjanson, {Linda J} and Currow, {David C} and Hudson, {Peter L} and Peter Hudson",
year = "2005",
month = "10",
language = "English",
volume = "19",
pages = "551--5",
journal = "Palliative Medicine",
issn = "0269-2163",
publisher = "SAGE Publications Ltd",
number = "7",

}

Aoun, SM, Kristjanson, LJ, Currow, DC, Hudson, PL & Hudson, P 2005, 'Caregiving for the terminally ill: at what cost?', Palliative Medicine, vol. 19, no. 7, pp. 551-5.

Caregiving for the terminally ill : at what cost? / Aoun, Samar M; Kristjanson, Linda J; Currow, David C; Hudson, Peter L; Hudson, Peter.

In: Palliative Medicine, Vol. 19, No. 7, 10.2005, p. 551-5.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Caregiving for the terminally ill

T2 - at what cost?

AU - Aoun, Samar M

AU - Kristjanson, Linda J

AU - Currow, David C

AU - Hudson, Peter L

AU - Hudson, Peter

PY - 2005/10

Y1 - 2005/10

N2 - This literature review exposes the nature and extent of physical and psychosocial morbidity and economic disadvantage, home palliative caregivers suffer as a direct result of their caregiving role. Research has demonstrated that caregivers providing support to individuals receiving palliative care report unmet needs for information, communication, service provision and support from health and community services. Three sets of challenges are highlighted in this literature review which help explain why the needs of home palliative caregivers are largely unmet: (i) barriers to seeking help; (ii) a dearth of research-based interventions focused on reducing the negative aspects of caregiving; and (iii) a number of impediments to effective policy and service development for family caregivers. Furthermore, invited submissions from caregivers echoed and confirmed the issues reported in the literature. Recommendations for enhancing caregiver support are outlined.

AB - This literature review exposes the nature and extent of physical and psychosocial morbidity and economic disadvantage, home palliative caregivers suffer as a direct result of their caregiving role. Research has demonstrated that caregivers providing support to individuals receiving palliative care report unmet needs for information, communication, service provision and support from health and community services. Three sets of challenges are highlighted in this literature review which help explain why the needs of home palliative caregivers are largely unmet: (i) barriers to seeking help; (ii) a dearth of research-based interventions focused on reducing the negative aspects of caregiving; and (iii) a number of impediments to effective policy and service development for family caregivers. Furthermore, invited submissions from caregivers echoed and confirmed the issues reported in the literature. Recommendations for enhancing caregiver support are outlined.

KW - Health Services Needs and Demand

KW - Terminal Care

KW - Caregivers

KW - Humans

KW - Terminally Ill

KW - Community Health Services

KW - Health Services Accessibility

M3 - Article

C2 - 16295288

VL - 19

SP - 551

EP - 555

JO - Palliative Medicine

JF - Palliative Medicine

SN - 0269-2163

IS - 7

ER -

Aoun SM, Kristjanson LJ, Currow DC, Hudson PL, Hudson P. Caregiving for the terminally ill: at what cost? Palliative Medicine. 2005 Oct;19(7):551-5.