Echoes of the future: Adults with disabilities living at home with their parents

Karola Dillenburger; Lynne McKerr

Echoes of the future: Adults with disabilities living at home with their parents

Research output: Contribution to journal › Article › peer-review

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Abstract

Almost 90% of all adult sons and daughters with disabilities live at home with their parents. Consequently, they have life experiences that are atypical for most of their adult peers and their aging caregivers are under stress due to failing health, financial pressures, bereavement, and worry about the future.

Adults with intellectual disabilities and aging parents took part in focus groups and interviews. results show a loving and caring home environment but evidence a lack of effective life skills development and futures planning. the paper draws attention to the inevitable crisis that occurs when aging caregivers are no longer able to care. The urgent need for skill development and timely futures planning is outlined.

Original language	English
Article number	012
Journal	Journal of Neurology and Clinical Neuroscience
Volume	1
Issue number	2
Publication status	Published - 27 Sept 2014

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Echoes of the Future: Adults with Disabilities Living at Home with Their Parents
Copyright 2014 the authors. This is an open access Creative Commons Attribution-NonCommercial License (https://creativecommons.org/licenses/by-nc/4.0/), which permits use, distribution and reproduction for non-commercial purposes, provided the author and source are cited.
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http://www.jacobspublishers.com/index.php/j-j-neur-neurosci-1-2-012

1 Active
3 Finished

R3346EDU: Helping the most vulnerable out of the poverty trap ......
Dillenburger, K. (PI)
01/08/2011 → …
Project: Research
R3225EDU: OFMDFM - Equality and Social Need Research ( Dr Dillenburger)
Dillenburger, K. (PI)
01/08/2009 → 28/02/2011
Project: Research
R9153SSP: Older People as Carers
Dillenburger, K. (PI)
01/08/2007 → 31/08/2008
Project: Research

International interview With Professor Karola Dillenburger, Queen´s University, Belfast
Hrebeňárová, , L. & Dillenburger, K., Feb 2016, In: Specialny Pedagog. p. 85-97 13 p.
Research output: Contribution to journal › Article

Open Access
File
Caring for sons and daughters with disabilities across the life course: Hearing the data: Commissioned Report
Dillenburger, K., Nov 2011, Unknown Publisher.
Research output: Book/Report › Other report

File
'How long are we able to go on?' Issues faced by older family caregivers of adults with disabilities
Dillenburger, K. & McKerr, L., 01 Mar 2011, In: British Journal of Learning Disabilities. 39, 1, p. 29-38
Research output: Contribution to journal › Article › peer-review

Open Access
File
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Cite this

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title = "Echoes of the future: Adults with disabilities living at home with their parents",

abstract = "Almost 90\% of all adult sons and daughters with disabilities live at home with their parents. Consequently, they have life experiences that are atypical for most of their adult peers and their aging caregivers are under stress due to failing health, financial pressures, bereavement, and worry about the future. Adults with intellectual disabilities and aging parents took part in focus groups and interviews. results show a loving and caring home environment but evidence a lack of effective life skills development and futures planning. the paper draws attention to the inevitable crisis that occurs when aging caregivers are no longer able to care. The urgent need for skill development and timely futures planning is outlined.",

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Echoes of the future: Adults with disabilities living at home with their parents

Abstract

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Projects

R3346EDU: Helping the most vulnerable out of the poverty trap ......

R3225EDU: OFMDFM - Equality and Social Need Research ( Dr Dillenburger)

R9153SSP: Older People as Carers

Research output

International interview With Professor Karola Dillenburger, Queen´s University, Belfast

Caring for sons and daughters with disabilities across the life course: Hearing the data: Commissioned Report

'How long are we able to go on?' Issues faced by older family caregivers of adults with disabilities

Cite this