Exploring the challenges of accessing medication for patients with cystic fibrosis

Sophie Herbert; Nicola Jane Rowbotham; Sherie Smith; Patrick Wilson; Zoe C. Elliott; Paul A. Leighton; Alistair Duff; Alan Robert Smyth

doi:10.1136/thoraxjnl-2021-217140

Exploring the challenges of accessing medication for patients with cystic fibrosis

Sophie Herbert, Nicola Jane Rowbotham, Sherie Smith, Patrick Wilson, Zoe C. Elliott, Paul A. Leighton, Alistair Duff, Alan Robert Smyth

Research output: Contribution to journal › Article › peer-review

2 Citations (Scopus)

Abstract

Reducing treatment burden in cystic fibrosis (CF) is the top research priority for patients and clinicians. Difficulty accessing medication is one aspect of treatment burden. We investigated this with an online survey available globally for patients with CF and healthcare professionals. Almost three quarters of patients with CF in our survey report difficulty getting repeat prescriptions on time, and most community pharmacists experience interrupted supplies of CF-specific medications. These barriers affect emotional and physical health of people with CF. Two-thirds of people with CF would like to get all their CF medication from one place, their CF centre.

Original language	English
Pages (from-to)	295-297
Number of pages	3
Journal	Thorax
Volume	77
Issue number	3
Early online date	23 Sept 2021
DOIs	https://doi.org/10.1136/thoraxjnl-2021-217140
Publication status	Published - 01 Mar 2022
Externally published	Yes

Bibliographical note

Publisher Copyright:
© Author(s) (or their employer(s)) 2022. No commercial re-use. See rights and permissions. Published by BMJ.

Keywords

cystic fibrosis
psychology
respiratory infection

ASJC Scopus subject areas

Pulmonary and Respiratory Medicine

Access to Document

10.1136/thoraxjnl-2021-217140Licence: Unspecified

Cite this

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title = "Exploring the challenges of accessing medication for patients with cystic fibrosis",

abstract = "Reducing treatment burden in cystic fibrosis (CF) is the top research priority for patients and clinicians. Difficulty accessing medication is one aspect of treatment burden. We investigated this with an online survey available globally for patients with CF and healthcare professionals. Almost three quarters of patients with CF in our survey report difficulty getting repeat prescriptions on time, and most community pharmacists experience interrupted supplies of CF-specific medications. These barriers affect emotional and physical health of people with CF. Two-thirds of people with CF would like to get all their CF medication from one place, their CF centre.",

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doi = "10.1136/thoraxjnl-2021-217140",

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AU - Herbert, Sophie

AU - Rowbotham, Nicola Jane

AU - Smith, Sherie

AU - Wilson, Patrick

AU - Elliott, Zoe C.

AU - Leighton, Paul A.

AU - Duff, Alistair

AU - Smyth, Alan Robert

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KW - cystic fibrosis

KW - psychology

KW - respiratory infection

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ER -

Exploring the challenges of accessing medication for patients with cystic fibrosis

Abstract

Bibliographical note

Keywords

ASJC Scopus subject areas

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Cite this