Facilitating advance care planning (ACP) conversations in a community setting – a two-phase study to co-design and evaluate a digital ACP resource for community nurses, care recipients and caregivers

Roisin O'Neill, Olivia Jamison, Alice Coffey, Julie Doherty, Owen Doody, Anne Finucane, Julie Green , Karen Harrison Dening, Gary Mitchell, Nancy Preston, Kevin Brazil

Research output: Contribution to journalMeeting abstractpeer-review

Abstract

Introduction
Community nurses play a key role in facilitating Advance Care Planning (ACP) discussions as they deliver care throughout the illness trajectory and have built rapport with patients. The ACP process should be person-centred, with care recipients and caregivers engaging actively in the process. Education is necessary to ensure understanding and confidence in the process for all involved.
‘Necessary Discussions’ is a digital resource developed to encourage ACP conversations in care home settings during COVID. An adaption of this resource – tailoring to a community nursing setting – will enhance knowledge of ACP and contribute to meaningful, shared decision-making conversations between community nurses, care recipients and caregivers.

Aim
To adapt, implement and evaluate an ACP digital intervention for use within a community nursing setting, supporting communication and decision making on goals of care.

Methods
Phase 1: The ‘Necessary Discussions’ resource will be reviewed and adapted via a series of interviews and co-design workshops with care recipients, caregivers, and community nurses.
Phase 2: N=60 community nurses and n=60 care recipients/caregivers will evaluate the resource (via online questionnaire) to assess its perceived usefulness, ease of use, and usage pattern. A subsample of participants (n=12) will complete an interview assessing impact on knowledge.

Results
Phase 1 is complete. Care recipients & caregivers (n=7 interviewees and n=2 co-design workshops) and community nurses (n=6 interviewees and n=3 co-design workshops) contributed their expertise. Findings suggest that 1) Communication skills, 2) Benefits of ACP 3) Strategies to address challenges and 4) Diversity and inclusivity, should be emphasised in the new education resource.

Conclusion
The new resource has been developed based on Phase 1 findings. Phase 2 is ongoing with results available February 2024.

Impact
The development of an open access, co-designed digital resource to enhance knowledge of the ACP process and support early conversations in a community setting.

Original languageEnglish
Article number60
JournalBMJ Supportive and Palliative Care
Volume14
Issue numberSuppl 1
DOIs
Publication statusPublished - 01 Feb 2024
EventMarie Curie Research Conference 2024 - Online
Duration: 05 Feb 202409 Feb 2024
https://www.mariecurie.org.uk/research/annual-research-conference

Keywords

  • Advance Care Planning
  • Community Nursing
  • Digital Health

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