Focus group study of endometriosis: Struggle, loss and the medical merry-go-round

Helen Cox*, Lorraine Henderson, Natalie Andersen, Glenda Cagliarini, Chantal Ski

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

90 Citations (Scopus)


Women with endometriosis experience a range of problems for which they may or may not be adequately supported. This paper reports on one aspect of a study conducted at the Epworth Hospital, Melbourne, to identify the information needs of women facing laparoscopy for endometriosis. A number of focus groups were conducted that provided women with a forum for communicating their experiences of endometriosis and laparoscopy. The findings include the experiences of 61 women who described the lack of support, the struggles and the losses involved in living with endometriosis. By far the worst experience that these women described was the encounter with health professionals and the ways in which their symptoms were trivialised and dismissed. There is a great deal for nurses to learn about the experience of living with endometriosis if they are to support women with this chronic illness in their search for well-being.

Original languageEnglish
Pages (from-to)2-9
Number of pages8
JournalInternational Journal of Nursing Practice
Issue number1
Publication statusPublished - 01 Dec 2003
Externally publishedYes


  • Delayed diagnosis
  • Endometriosis
  • Loss
  • Taking control
  • Trivialisation

ASJC Scopus subject areas

  • Nursing(all)


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