From Telling to Sharing to Silence: A Longitudinal Ethnography on Healthcare Professional-Patient Communication about Oral Chemotherapy.

Gary Mitchell, Sam Porter, Elizabeth Manias

Research output: Contribution to conferencePaperpeer-review

Abstract

Introduction:
Healthcare professionals are encouraged to promote concordance, a shared agreement about prescription and administration of medications, in their communication with patients. However, there is a paucity of research regarding the impact of communication about self-administered oral chemotherapy. The aim of this study was to examine the changing dynamics of communication through the patient journey from diagnosis of colorectal cancer to post treatment of chemotherapy.
Methods:
Over 60 hours of observational data were digitally recorded from interactions between 15 healthcare professionals, 8 patients with colorectal cancer prescribed Capecitabine and 11 family members over a six-month period in outpatient departments within one hospital in the United Kingdom. Sixteen semi-structured interviews were conducted with patients during and after their treatment. Three focus-groups were carried out with healthcare professionals. These data were analysed using thematic analysis.
Results:
The patient journey followed a path of four distinct phases: autocracy, physiological concordance, holistic concordance and silence. Initially, communication was medicalised with patients occupying a passive role. As patients continued their journey, they took a more active role in their treatment discussion by leading consultations and sharing their priorities of care. At the end of treatment, patients felt isolated and unsupported when they were discharged from their oncology team.
Conclusions:
Communication about oral chemotherapy is not a static process; it evolves to take account of changing clinical requirements and growing patient confidence in dealing with their cancer. Different stages in the treatment journey indicate the need for different approaches to communication.
Original languageEnglish
Publication statusPublished - 23 Jun 2019
Event2019 MASCC (Multinational Association of Supportive Cancer Care) Conference - Hyatt Regency, San Francisco, San Francisco, United States
Duration: 21 Jun 201923 Jun 2019
https://www.mascc.org/annual-meeting

Conference

Conference2019 MASCC (Multinational Association of Supportive Cancer Care) Conference
Abbreviated titleMASCC 2019
Country/TerritoryUnited States
CitySan Francisco
Period21/06/201923/06/2019
Internet address

Keywords

  • Oral Chemotherapy
  • Chemothearpy
  • Oncology
  • Cancer
  • Communication
  • Ethnography
  • Qualitative Research

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