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Abstract
Research-informed policy and practice is needed for older caregivers of adult sons/daughters with disabilities. These caregivers are often under tremendous stress because of failing health, financial pressures, bereavement and worry about the future of their sons/daughters. Twenty-nine older parents/caregivers of 27 adults with intellectual and/or developmental disabilities were interviewed to explore their views and experiences regarding long-term care and service arrangements, health and psychological needs and 'future planning'. Findings show a severe lack of support, respite care and future planning which causes high stress levels for caregivers. Policy makers and researchers working in this field need to take into consideration the needs of older caregivers when making future plans for adults with disabilities.
| Original language | English |
|---|---|
| Pages (from-to) | 29-38 |
| Journal | British Journal of Learning Disabilities |
| Volume | 39 |
| Issue number | 1 |
| Early online date | 11 Feb 2011 |
| DOIs | |
| Publication status | Published - 01 Mar 2011 |
ASJC Scopus subject areas
- Pediatrics
- Phychiatric Mental Health
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- 'How long are we able to go on?' Issues faced by older family caregivers of adults with disabilities
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Echoes of the future: Adults with disabilities living at home with their parents
Dillenburger, K. & McKerr, L., 27 Sept 2014, In: Journal of Neurology and Clinical Neuroscience. 1, 2, 012.Research output: Contribution to journal › Article › peer-review
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