How well do the public understand palliative care? A mixed methods study

Sonja McIlfatrick, Felicity Hasson, Helen Noble, Dorry McLaughlin, Audrey Roulston, Lesley Rutherford, Gail Johnston, George Kernohan

Research output: Contribution to conferenceAbstract

Abstract

Background: International research suggests that the general public appear to be confused about what palliative care is and who provides it.1 2 An understanding of public views is needed in order to target education and policy campaigns and to manage future needs, expectations and resourcing of care.

Aim: The aim of this study was to establish the current levels of awareness and perceptions of palliative care among the general public in Northern Ireland.

Methods: A mixed methods study comprising two phases was undertaken. A community-based cross-sectional survey with a population of 3,557 individuals aged over 17 years was performed. Information was collected using a structured questionnaire consisting of 17 items. Open questions were subject to content analysis; closed questions were subject to descriptive statistics with inferential testing as appropriate. This was followed by semi structured telephone interviews (n=50).

Results: Responses indicated limited knowledge about palliative care. Respondents who worked in healthcare themselves or who had a close relative or friend who had used a palliative care service were more aware of palliative care and the availability of different palliative care services. The main barriers to raising awareness were fear, lack of interaction with health services and perception of lack of resources. A key aspect identified for promoting palliative care was the development of understanding and use of the term itself and targeted educational strategies.

Conclusions: Public awareness of the concept of palliative care and of service availability remains insufficient. An increased awareness of palliative care is needed, in order to improve knowledge of and access to services when required, empower individuals, involve communities and ultimately to improve the delivery of palliative and end-of-life care.
Original languageEnglish
PagesA2
Number of pages1
DOIs
Publication statusPublished - 2014
Event10th Palliative Care Congress - Harrogate International Centre, Harrogate, United Kingdom
Duration: 12 Mar 201414 Mar 2014

Conference

Conference10th Palliative Care Congress
CountryUnited Kingdom
CityHarrogate
Period12/03/201414/03/2014

Fingerprint

Palliative Care
Northern Ireland
Terminal Care
Health Services
Fear
Cross-Sectional Studies
Interviews
Delivery of Health Care
Education
Research
Population

Bibliographical note

OP 004

Cite this

McIlfatrick, S., Hasson, F., Noble, H., McLaughlin, D., Roulston, A., Rutherford, L., ... Kernohan, G. (2014). How well do the public understand palliative care? A mixed methods study. A2. Abstract from 10th Palliative Care Congress, Harrogate, United Kingdom. https://doi.org/10.1136/bmjspcare-2014-000654.4
McIlfatrick, Sonja ; Hasson, Felicity ; Noble, Helen ; McLaughlin, Dorry ; Roulston, Audrey ; Rutherford, Lesley ; Johnston, Gail ; Kernohan, George. / How well do the public understand palliative care? A mixed methods study. Abstract from 10th Palliative Care Congress, Harrogate, United Kingdom.1 p.
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title = "How well do the public understand palliative care? A mixed methods study",
abstract = "Background: International research suggests that the general public appear to be confused about what palliative care is and who provides it.1 2 An understanding of public views is needed in order to target education and policy campaigns and to manage future needs, expectations and resourcing of care.Aim: The aim of this study was to establish the current levels of awareness and perceptions of palliative care among the general public in Northern Ireland.Methods: A mixed methods study comprising two phases was undertaken. A community-based cross-sectional survey with a population of 3,557 individuals aged over 17 years was performed. Information was collected using a structured questionnaire consisting of 17 items. Open questions were subject to content analysis; closed questions were subject to descriptive statistics with inferential testing as appropriate. This was followed by semi structured telephone interviews (n=50).Results: Responses indicated limited knowledge about palliative care. Respondents who worked in healthcare themselves or who had a close relative or friend who had used a palliative care service were more aware of palliative care and the availability of different palliative care services. The main barriers to raising awareness were fear, lack of interaction with health services and perception of lack of resources. A key aspect identified for promoting palliative care was the development of understanding and use of the term itself and targeted educational strategies.Conclusions: Public awareness of the concept of palliative care and of service availability remains insufficient. An increased awareness of palliative care is needed, in order to improve knowledge of and access to services when required, empower individuals, involve communities and ultimately to improve the delivery of palliative and end-of-life care.",
author = "Sonja McIlfatrick and Felicity Hasson and Helen Noble and Dorry McLaughlin and Audrey Roulston and Lesley Rutherford and Gail Johnston and George Kernohan",
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McIlfatrick, S, Hasson, F, Noble, H, McLaughlin, D, Roulston, A, Rutherford, L, Johnston, G & Kernohan, G 2014, 'How well do the public understand palliative care? A mixed methods study', 10th Palliative Care Congress, Harrogate, United Kingdom, 12/03/2014 - 14/03/2014 pp. A2. https://doi.org/10.1136/bmjspcare-2014-000654.4

How well do the public understand palliative care? A mixed methods study. / McIlfatrick, Sonja; Hasson, Felicity; Noble, Helen; McLaughlin, Dorry; Roulston, Audrey; Rutherford, Lesley; Johnston, Gail; Kernohan, George.

2014. A2 Abstract from 10th Palliative Care Congress, Harrogate, United Kingdom.

Research output: Contribution to conferenceAbstract

TY - CONF

T1 - How well do the public understand palliative care? A mixed methods study

AU - McIlfatrick, Sonja

AU - Hasson, Felicity

AU - Noble, Helen

AU - McLaughlin, Dorry

AU - Roulston, Audrey

AU - Rutherford, Lesley

AU - Johnston, Gail

AU - Kernohan, George

N1 - OP 004

PY - 2014

Y1 - 2014

N2 - Background: International research suggests that the general public appear to be confused about what palliative care is and who provides it.1 2 An understanding of public views is needed in order to target education and policy campaigns and to manage future needs, expectations and resourcing of care.Aim: The aim of this study was to establish the current levels of awareness and perceptions of palliative care among the general public in Northern Ireland.Methods: A mixed methods study comprising two phases was undertaken. A community-based cross-sectional survey with a population of 3,557 individuals aged over 17 years was performed. Information was collected using a structured questionnaire consisting of 17 items. Open questions were subject to content analysis; closed questions were subject to descriptive statistics with inferential testing as appropriate. This was followed by semi structured telephone interviews (n=50).Results: Responses indicated limited knowledge about palliative care. Respondents who worked in healthcare themselves or who had a close relative or friend who had used a palliative care service were more aware of palliative care and the availability of different palliative care services. The main barriers to raising awareness were fear, lack of interaction with health services and perception of lack of resources. A key aspect identified for promoting palliative care was the development of understanding and use of the term itself and targeted educational strategies.Conclusions: Public awareness of the concept of palliative care and of service availability remains insufficient. An increased awareness of palliative care is needed, in order to improve knowledge of and access to services when required, empower individuals, involve communities and ultimately to improve the delivery of palliative and end-of-life care.

AB - Background: International research suggests that the general public appear to be confused about what palliative care is and who provides it.1 2 An understanding of public views is needed in order to target education and policy campaigns and to manage future needs, expectations and resourcing of care.Aim: The aim of this study was to establish the current levels of awareness and perceptions of palliative care among the general public in Northern Ireland.Methods: A mixed methods study comprising two phases was undertaken. A community-based cross-sectional survey with a population of 3,557 individuals aged over 17 years was performed. Information was collected using a structured questionnaire consisting of 17 items. Open questions were subject to content analysis; closed questions were subject to descriptive statistics with inferential testing as appropriate. This was followed by semi structured telephone interviews (n=50).Results: Responses indicated limited knowledge about palliative care. Respondents who worked in healthcare themselves or who had a close relative or friend who had used a palliative care service were more aware of palliative care and the availability of different palliative care services. The main barriers to raising awareness were fear, lack of interaction with health services and perception of lack of resources. A key aspect identified for promoting palliative care was the development of understanding and use of the term itself and targeted educational strategies.Conclusions: Public awareness of the concept of palliative care and of service availability remains insufficient. An increased awareness of palliative care is needed, in order to improve knowledge of and access to services when required, empower individuals, involve communities and ultimately to improve the delivery of palliative and end-of-life care.

U2 - 10.1136/bmjspcare-2014-000654.4

DO - 10.1136/bmjspcare-2014-000654.4

M3 - Abstract

SP - A2

ER -

McIlfatrick S, Hasson F, Noble H, McLaughlin D, Roulston A, Rutherford L et al. How well do the public understand palliative care? A mixed methods study. 2014. Abstract from 10th Palliative Care Congress, Harrogate, United Kingdom. https://doi.org/10.1136/bmjspcare-2014-000654.4