"I know I didn't ask for it, but I've got it and I've let my kids down": A secondary data analysis of qualitative maternal perspectives of their and adolescent children's unmet needs through a cancer diagnosis

Leonor Rodriguez, Pat Dolan, Michael Kerin, AnnMarie Groarke

Research output: Contribution to journalArticlepeer-review

Abstract

This article is a secondary data analysis which explores maternal unmet needs and their perception of the 'unmet needs' of adolescent children when they experienced maternal cancer. The analysis is underpinned by the theoretical framework of the Offspring Cancer Needs Instrument OCNI, (Patterson et al., 2013). A secondary data analysis was carried out with ten maternal interviews analyzed using a deductive Thematic Analysis. This was to identify maternal unmet needs as well as their perceptions of their adolescent children's unmet needs and determine whether the OCNI framework was suitable to identify unmet needs of mothers and adolescent children in an Irish context. The study found cancer is a challenging emotional burden for both mothers and their adolescent children. Emotions related to cancer recurrence were particularly difficult to deal with. Mothers struggle to identify the unmet needs of adolescent children and recognize that they lack the skills to approach the children, which adds to the burden of their illness burden and feelings of guilt. The study highlights the need to provide safe spaces for patients and adolescent children to deal with their emotions, strengthen relationships and improve communication associated with maternal cancer as these have a significant impact in their lives and may lead to tension and conflict within families. [Abstract copyright: Copyright © 2022. Published by Elsevier Ltd.]
Original languageEnglish
Article number102191
JournalEuropean journal of oncology nursing : the official journal of European Oncology Nursing Society
Volume63
Early online date25 Dec 2022
DOIs
Publication statusEarly online date - 25 Dec 2022
Externally publishedYes

Keywords

  • Unmet needs
  • Adolescents
  • Maternal cancer

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