Abstract
Background: There is uncertainty about the most important indicators of pulmonary exacerbations in CF.
Methods: Two parallel Delphi surveys in 13 CF centres (UK and Ireland). Delphi 1: 31 adults with CF, ≥one exacerbation over 12 months. Delphi
2: 38 CF health professionals. Rounds 1 and 2 participants rated their level of agreement with statements relating to indicators of exacerbation;
Round 3 participants rated the importance of statements which were subsequently placed in rank order.
Results: Objective measurements were of higher importance to health professionals. Feelings of increased debility were rated most important by
adults with CF.
Conclusions: There were clear differences in perspectives between the two groups as to the most important indicators of an exacerbation. This
highlights that CF health professionals should take more cognisance of specific signs and symptoms reported by adults with CF, especially since
these may be a precursor to an exacerbation.
Original language | English |
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Pages (from-to) | 90 - 96 |
Number of pages | 7 |
Journal | Journal of Cystic Fibrosis |
Volume | 14 |
Issue number | 1 |
Early online date | 12 Aug 2014 |
DOIs | |
Publication status | Published - Jan 2015 |
Keywords
- pulmonary
- exacerbation
- cystic fibrosis
- Delphi Technique