Interventions supporting the psychosocial health and wellbeing of informal caregivers of people with dementia in low- and middle-income countries (LMICs): A systematic review

Lana Cook, Hien Ho Thi, Olinda Santin, Carole Parsons, Gary Mitchell, Catherine Monaghan, Gillian Carter*, Laurence Lord

*Corresponding author for this work

Research output: Contribution to conferencePosterpeer-review

Abstract

Background: Growing incidence of dementia increases the number of informal caregivers providing support to people living with dementia. However, unmet needs of caregivers in LMICs are compounded by lack of resources and health care infrastructure. The extent to which supportive interventions are
implemented in LMICs remains unclear.

Aims: To assess the nature and effectiveness of interventions supporting informal caregivers of people with dementia in LMICs regarding psychosocial outcome measures including: burden, distress, anxiety, and depression.

Method: A systematic review of 36 online global and regional databases, registries, journals and directories was conducted April–June 2021, directed by the Centre for Reviews and Dissemination guidance for undertaking systematic reviews (2009) and Cochrane Handbook for Systematic Reviews of
Interventions (2021). Risk of bias was assessed using RoB 2.0 and ROBINS-I tools; data were extracted using a standardised form and synthesised using continuous caregiver outcome measures.

Peliminary Results: The search identified 1538 records. Following duplicate removal, title/abstract screening, and full text review, 35 controlled trials were included, published 2004–2021, representing 13 LMICs. Study interventions focused on three domains: dementia education; education/training on managing behavioural and psychological symptoms of dementia; management of the impact of caregiving. Preliminary results trend towards enhanced caregiver wellbeing following interventions; however, study quality was predominately ‘some concerns’ or ‘high’ risk of bias.

Conclusions: Unmet needs of informal dementia caregivers are rising in LMICs, requiring effective solutions. Further investigation into essential components of an intervention to support and significantly enhance their psychosocial health and wellbeing, is needed.
Original languageEnglish
Publication statusPublished - 09 Jun 2022
EventThe 35th Global Conference of Alzheimer's Disease International - London, United Kingdom
Duration: 09 Jun 202211 Jun 2022
https://adiconference.org/files/general/ADI-2022-Conference-programme-Final.pdf

Conference

ConferenceThe 35th Global Conference of Alzheimer's Disease International
Abbreviated titleADI
Country/TerritoryUnited Kingdom
CityLondon
Period09/06/202211/06/2022
Internet address

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