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The number of children diagnosed with an autistic spectrum disorder (ASD) is rising and is now thought to be as high as 1:100. While the debate about best treatment continues, the effects of having a child diagnosed with ASD on family life remain relatively unexplored. This article, by Karola Dillenburger of Queens University Belfast, Mickey Keenan of the University of Ulster, Alvin Doherty from the Health Service Executive Western Region, Tony Byrne of Parents’ Education as Autism Therapists (PEAT) and Stephen Gallagher of the University of Ulster, sets out to adjust that balance. Drawing upon data from a comprehensive study of parental needs, these authors argue that parental and professional views do not always concur; that families make extraordinary sacrifices; that siblings are affected; and that parents are under tremendous stress. Parents argue that educational and social service supports are not efficient and that they are forced to rely largely on support from within the family or from friends. In particular, some important differences between parental and professional perceptions became apparent in relation to interventions based on Applied Behaviour Analysis (ABA). The authors of this article propose that these differences need to be taken seriously by teachers and other professionals as well as by policy-makers.
|Number of pages||25|
|Journal||British Journal of Special Education|
|Publication status||Published - 2010|
FingerprintDive into the research topics of 'Living with children diagnosed with Autism Spectrum Disorder: Parental and professional views'. Together they form a unique fingerprint.
- 1 Invited talk
Invited Keynote: The history of autism and ABA in Europe.
Karola Dillenburger (Speaker)23 Sep 2015
Activity: Talk or presentation types › Invited talk
The Conversation QUB FilmDillenburger, K., 2017
Research output: Non-textual form › Digital or Visual ProductsOpen Access
The Evidence Debate for Behavioural Interventions for AutismFennell, B. & Dillenburger, K., 24 Apr 2014, In: International Research in Education. 2, 2, 15 p.
Research output: Contribution to journal › Article › peer-reviewOpen AccessFile299 Downloads (Pure)