Network methods to support user involvement in qualitative data analyses: An introduction to Participatory Theme Elicitation

Paul Best, Jennifer Badham, Rekesh Corepal, Roisin O'Neill, Mark Tully, Frank Kee, Ruth Hunter

Research output: Contribution to journalArticle

8 Citations (Scopus)
197 Downloads (Pure)

Abstract

Background: While Patient and Public Involvement (PPI) is encouraged throughout the research process, engagement is typically limited to intervention design and post-analysis stages. There are few approaches to participatory data analyses within complex health interventions.
Methods: Using qualitative data from a feasibility RCT, this proof of concept study tests the value of a new approach to participatory data analysis called Participatory Theme Elicitation (PTE). Forty excerpts were given to eight members of a youth advisory PPI panel to sort into piles based on their perception of related thematic content. Using algorithms to detect communities in networks, excerpts were then assigned to a thematic cluster that combined the panel members' perspectives. Network analysis techniques were also used to identify key excerpts in each grouping that were then further explored qualitatively.
Results: While PTE analysis was, for the most part, consistent with the researcher led analysis, young people also identified new emerging thematic content.
Conclusions: PTE appears promising for encouraging user led identification of themes arising from qualitative data collected during complex interventions. Further work is required to validate and extend this method.
Original languageEnglish
Article number559
Number of pages14
JournalTrials
Volume18
DOIs
Publication statusPublished - 23 Nov 2017

Keywords

  • Network analysis; participatory analysis; user involvement; trials; patient and public involvement

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