Perspectives on caregiver-reported outcomes in cardiovascular diseases today and in future healthcare services: a statement of Association of Cardiovascular Nursing & Allied Professions (ACNAP), Association for Acute CardioVascular Care (ACVC), the Heart Failure Association (HFA), ESC Council on Stroke, and Global Heart Hub, the International Alliance of Heart Patient Organisations

Irene Lie; Britt Borregaard; Suzanne Fredericks; Annie Costelloe; Angela Durante; Johannes Grand; Loreena Hill; Rani Khatib; Martha Kyriakou; Ekaterini Lambrinou; Angela Massouh; Lis Neubeck; Francois Schiele; Marco Proietti; Jose Miguel Rivera-Caravaca; David R Thompson; Philip Moons

doi:10.1093/eurjcn/zvaf211

Perspectives on caregiver-reported outcomes in cardiovascular diseases today and in future healthcare services: a statement of Association of Cardiovascular Nursing & Allied Professions (ACNAP), Association for Acute CardioVascular Care (ACVC), the Heart Failure Association (HFA), ESC Council on Stroke, and Global Heart Hub, the International Alliance of Heart Patient Organisations

Irene Lie^*
, Britt Borregaard
, Suzanne Fredericks
, Annie Costelloe
, Angela Durante
, Johannes Grand
, Loreena Hill
, Rani Khatib
, Martha Kyriakou
, Ekaterini Lambrinou
, Angela Massouh
, Lis Neubeck
, Francois Schiele
, Marco Proietti
, Jose Miguel Rivera-Caravaca
, David R Thompson
, Philip Moons

^*Corresponding author for this work

School of Nursing and Midwifery

Research output: Contribution to journal › Article › peer-review

1 Citation (Scopus)

Abstract

A rapidly ageing population implies an increasing demand for informal caregivers. Caregiver-reported outcomes (CROs) can provide valuable insights into caregivers' experiences of their own health, the burden of tasks, and the need for support. This scientific statement provides a comprehensive overview of CROs in populations with cardiovascular diseases (CROsCVD). The existing CROs measure impact of caregiving; caregiver skills and preparedness; caregiver emotional and psychological impact; and caregiver support. The integration of CROs into clinical practice, alongside the development of more specific and culturally adaptive tools, will enhance the recognition of caregivers as key stakeholders in CVD management.

Original language	English
Journal	European journal of cardiovascular nursing
Early online date	31 Mar 2026
DOIs	https://doi.org/10.1093/eurjcn/zvaf211
Publication status	Early online date - 31 Mar 2026

Bibliographical note

© The Author(s) 2026. Published by Oxford University Press on behalf of the European Society of Cardiology. All rights reserved. For commercial re-use, please contact [email protected] for reprints and translation rights for reprints. All other permissions can be obtained through our RightsLink service via the Permissions link on the article page on our site—for further information please contact [email protected].

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

Keywords

Cardiovascular diseases
Caregiver burden
Caregiver-reported outcome measures
Caregivers
Health status

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Lie, I., Borregaard, B., Fredericks, S., Costelloe, A., Durante, A., Grand, J., Hill, L., Khatib, R., Kyriakou, M., Lambrinou, E., Massouh, A., Neubeck, L., Schiele, F., Proietti, M., Rivera-Caravaca, J. M., Thompson, D. R., & Moons, P. (2026). Perspectives on caregiver-reported outcomes in cardiovascular diseases today and in future healthcare services: a statement of Association of Cardiovascular Nursing & Allied Professions (ACNAP), Association for Acute CardioVascular Care (ACVC), the Heart Failure Association (HFA), ESC Council on Stroke, and Global Heart Hub, the International Alliance of Heart Patient Organisations. European journal of cardiovascular nursing. Advance online publication. https://doi.org/10.1093/eurjcn/zvaf211

Lie, Irene ; Borregaard, Britt ; Fredericks, Suzanne et al. / Perspectives on caregiver-reported outcomes in cardiovascular diseases today and in future healthcare services: a statement of Association of Cardiovascular Nursing & Allied Professions (ACNAP), Association for Acute CardioVascular Care (ACVC), the Heart Failure Association (HFA), ESC Council on Stroke, and Global Heart Hub, the International Alliance of Heart Patient Organisations. In: European journal of cardiovascular nursing. 2026.

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title = "Perspectives on caregiver-reported outcomes in cardiovascular diseases today and in future healthcare services: a statement of Association of Cardiovascular Nursing \& Allied Professions (ACNAP), Association for Acute CardioVascular Care (ACVC), the Heart Failure Association (HFA), ESC Council on Stroke, and Global Heart Hub, the International Alliance of Heart Patient Organisations",

abstract = "A rapidly ageing population implies an increasing demand for informal caregivers. Caregiver-reported outcomes (CROs) can provide valuable insights into caregivers' experiences of their own health, the burden of tasks, and the need for support. This scientific statement provides a comprehensive overview of CROs in populations with cardiovascular diseases (CROsCVD). The existing CROs measure impact of caregiving; caregiver skills and preparedness; caregiver emotional and psychological impact; and caregiver support. The integration of CROs into clinical practice, alongside the development of more specific and culturally adaptive tools, will enhance the recognition of caregivers as key stakeholders in CVD management.",

keywords = "Cardiovascular diseases, Caregiver burden, Caregiver-reported outcome measures, Caregivers, Health status",

author = "Irene Lie and Britt Borregaard and Suzanne Fredericks and Annie Costelloe and Angela Durante and Johannes Grand and Loreena Hill and Rani Khatib and Martha Kyriakou and Ekaterini Lambrinou and Angela Massouh and Lis Neubeck and Francois Schiele and Marco Proietti and Rivera-Caravaca, \{Jose Miguel\} and Thompson, \{David R\} and Philip Moons",

note = "{\textcopyright} The Author(s) 2026. Published by Oxford University Press on behalf of the European Society of Cardiology. All rights reserved. For commercial re-use, please contact [email protected] for reprints and translation rights for reprints. All other permissions can be obtained through our RightsLink service via the Permissions link on the article page on our site—for further information please contact [email protected].",

year = "2026",

month = mar,

day = "31",

doi = "10.1093/eurjcn/zvaf211",

language = "English",

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Lie, I, Borregaard, B, Fredericks, S, Costelloe, A, Durante, A, Grand, J, Hill, L, Khatib, R, Kyriakou, M, Lambrinou, E, Massouh, A, Neubeck, L, Schiele, F, Proietti, M, Rivera-Caravaca, JM, Thompson, DR & Moons, P 2026, 'Perspectives on caregiver-reported outcomes in cardiovascular diseases today and in future healthcare services: a statement of Association of Cardiovascular Nursing & Allied Professions (ACNAP), Association for Acute CardioVascular Care (ACVC), the Heart Failure Association (HFA), ESC Council on Stroke, and Global Heart Hub, the International Alliance of Heart Patient Organisations', European journal of cardiovascular nursing. https://doi.org/10.1093/eurjcn/zvaf211

Perspectives on caregiver-reported outcomes in cardiovascular diseases today and in future healthcare services: a statement of Association of Cardiovascular Nursing & Allied Professions (ACNAP), Association for Acute CardioVascular Care (ACVC), the Heart Failure Association (HFA), ESC Council on Stroke, and Global Heart Hub, the International Alliance of Heart Patient Organisations. / Lie, Irene; Borregaard, Britt; Fredericks, Suzanne et al.
In: European journal of cardiovascular nursing, 31.03.2026.

Research output: Contribution to journal › Article › peer-review

TY - JOUR

T1 - Perspectives on caregiver-reported outcomes in cardiovascular diseases today and in future healthcare services: a statement of Association of Cardiovascular Nursing & Allied Professions (ACNAP), Association for Acute CardioVascular Care (ACVC), the Heart Failure Association (HFA), ESC Council on Stroke, and Global Heart Hub, the International Alliance of Heart Patient Organisations

AU - Lie, Irene

AU - Borregaard, Britt

AU - Fredericks, Suzanne

AU - Costelloe, Annie

AU - Durante, Angela

AU - Grand, Johannes

AU - Hill, Loreena

AU - Khatib, Rani

AU - Kyriakou, Martha

AU - Lambrinou, Ekaterini

AU - Massouh, Angela

AU - Neubeck, Lis

AU - Schiele, Francois

AU - Proietti, Marco

AU - Rivera-Caravaca, Jose Miguel

AU - Thompson, David R

AU - Moons, Philip

N1 - © The Author(s) 2026. Published by Oxford University Press on behalf of the European Society of Cardiology. All rights reserved. For commercial re-use, please contact [email protected] for reprints and translation rights for reprints. All other permissions can be obtained through our RightsLink service via the Permissions link on the article page on our site—for further information please contact [email protected].

PY - 2026/3/31

Y1 - 2026/3/31

N2 - A rapidly ageing population implies an increasing demand for informal caregivers. Caregiver-reported outcomes (CROs) can provide valuable insights into caregivers' experiences of their own health, the burden of tasks, and the need for support. This scientific statement provides a comprehensive overview of CROs in populations with cardiovascular diseases (CROsCVD). The existing CROs measure impact of caregiving; caregiver skills and preparedness; caregiver emotional and psychological impact; and caregiver support. The integration of CROs into clinical practice, alongside the development of more specific and culturally adaptive tools, will enhance the recognition of caregivers as key stakeholders in CVD management.

AB - A rapidly ageing population implies an increasing demand for informal caregivers. Caregiver-reported outcomes (CROs) can provide valuable insights into caregivers' experiences of their own health, the burden of tasks, and the need for support. This scientific statement provides a comprehensive overview of CROs in populations with cardiovascular diseases (CROsCVD). The existing CROs measure impact of caregiving; caregiver skills and preparedness; caregiver emotional and psychological impact; and caregiver support. The integration of CROs into clinical practice, alongside the development of more specific and culturally adaptive tools, will enhance the recognition of caregivers as key stakeholders in CVD management.

KW - Cardiovascular diseases

KW - Caregiver burden

KW - Caregiver-reported outcome measures

KW - Caregivers

KW - Health status

U2 - 10.1093/eurjcn/zvaf211

DO - 10.1093/eurjcn/zvaf211

M3 - Article

C2 - 41914819

SN - 1474-5151

JO - European journal of cardiovascular nursing

JF - European journal of cardiovascular nursing

ER -

Lie I, Borregaard B, Fredericks S, Costelloe A, Durante A, Grand J et al. Perspectives on caregiver-reported outcomes in cardiovascular diseases today and in future healthcare services: a statement of Association of Cardiovascular Nursing & Allied Professions (ACNAP), Association for Acute CardioVascular Care (ACVC), the Heart Failure Association (HFA), ESC Council on Stroke, and Global Heart Hub, the International Alliance of Heart Patient Organisations. European journal of cardiovascular nursing. 2026 Mar 31. Epub 2026 Mar 31. doi: 10.1093/eurjcn/zvaf211