Physical, emotional and social pain communication by patients diagnosed and living with multiple myeloma

Barry Quinn*, Heinz Ludwig, Abigail Bailey, Keerun Khela, Andrea Marongiu, Katie Brewer Carlson, Alex Rider, Anouchka Seesaghur

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

6 Citations (Scopus)
24 Downloads (Pure)

Abstract

Aim: To describe physical, social and emotional aspects of pain self-reported by patients with multiple myeloma (MM), and patient–physician communication of physical pain. Materials & methods: We analyzed self-reported data from 330 adults receiving anti-MM therapy in Germany and Italy on health-related quality of life (European Organisation for Research and Treatment of Cancer Quality of Life Core-30 Questionnaire version 3, -MY20) and bone pain symptoms. Results: Patients experienced clinically important physical (69%), emotional (58%) and social (22%) pain. Less than three-quarters of physicians’ records matched patients’ perception of bone pain (71.5%), with bone pain not recorded in 19.7% of patients experiencing it. Nearly half of physicians underestimated bone pain severity. Conclusion: Patients with MM experience physical, social and emotional pain. Discordance regarding bone pain symptoms and severity was observed, suggesting the need for improved communication.
Original languageEnglish
Pages (from-to)59–74
Number of pages16
JournalPain Management
Volume12
Issue number1
Early online date18 Jun 2021
DOIs
Publication statusPublished - Jan 2022

Keywords

  • communication
  • emotional
  • multiple myeloma
  • pain
  • physical
  • social

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