Physical, emotional and social pain communication by patients diagnosed and living with multiple myeloma

Barry Quinn, Heinz Ludwig, Abigail Bailey, Keerun Khela, Andrea Marongiu, Katie Brewer Carlson, Alex Rider, Anouchka Seesaghur

Research output: Contribution to journalArticlepeer-review

Abstract

Aim: To describe physical, social and emotional aspects of pain self-reported by patients with multiple myeloma (MM), and patient-physician communication of physical pain.
Materials & methods: We analyzed self-reported data from 330 adults receiving anti-MM therapy in Germany and Italy on health-related quality of life (European Organisation for Research and Treatment of Cancer Quality of Life Core-30 Questionnaire version 3, -MY20) and bone pain symptoms. 
Results: Patients experienced clinically important physical (69%), emotional (58%) and social (22%) pain. Less than three-quarters of physicians' records matched patients' perception of bone pain (71.5%), with bone pain not recorded in 19.7% of patients experiencing it. Nearly half of physicians underestimated bone pain severity. 
Conclusion: Patients with MM experience physical, social and emotional pain. Discordance regarding bone pain symptoms and severity was observed, suggesting the need for improved communication.
Original languageEnglish
JournalPain management
Early online date18 Jun 2021
DOIs
Publication statusEarly online date - 18 Jun 2021

Keywords

  • communication
  • emotional
  • multiple myeloma
  • pain
  • physical
  • social

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