Population-based study on the prevalence and clinical profile of adults with cerebral palsy in Northern Ireland

Karen McConnell; Emma Livingstone; Oliver Perra; C Kerr

doi:10.1136/bmjopen-2020-044614

Population-based study on the prevalence and clinical profile of adults with cerebral palsy in Northern Ireland

Karen McConnell, Emma Livingstone, Oliver Perra, C Kerr

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Abstract

OBJECTIVES: This study aimed to report the prevalence and clinical characteristics of adults with cerebral palsy (CP) in a geographically defined region of the UK.

DESIGN AND SETTING: Cross-sectional study using the Northern Ireland Cerebral Palsy Register (NICPR).

PARTICIPANTS: All validated cases known to the NICPR, born 1981-2001 and alive and resident in Northern Ireland at age 19 years were included.

RESULTS: The study included 1218 persons with CP aged 19-39 years, 46 of whom died in adulthood. The prevalence of CP was 2.38 per 1000. The majority of cases had spastic CP (n=1132/1218, 93%) and could walk (n=949/1218, 78%). Those that died in adulthood typically had bilateral spastic CP (n=39/46) and used a wheelchair (n=40/46).

CONCLUSION: The prevalence of CP in adults is similar to other common neurological conditions such as multiple sclerosis and Parkinson's disease. The needs of adults with CP vary widely with almost half having two or more associated impairments that may require multiprofessional and multiagency coordination. Results from this study can be used to inform transformation of health and care services for adults with CP.

Original language	English
Article number	e044614
Number of pages	6
Journal	BMJ Open
Volume	11
Issue number	1
DOIs	https://doi.org/10.1136/bmjopen-2020-044614
Publication status	Published - 08 Jan 2021

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Population-based study on the prevalence and clinical profile of adults with cerebral palsy in Northern Ireland
© 2021 The Authors. This is an open access Creative Commons Attribution-NonCommercial License (https://creativecommons.org/licenses/by-nc/4.0/), which permits use, distribution and reproduction for non-commercial purposes, provided the author and source are cited.
Final published version, 289 KBLicence: CC BY-NC

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title = "Population-based study on the prevalence and clinical profile of adults with cerebral palsy in Northern Ireland",

abstract = "OBJECTIVES: This study aimed to report the prevalence and clinical characteristics of adults with cerebral palsy (CP) in a geographically defined region of the UK.DESIGN AND SETTING: Cross-sectional study using the Northern Ireland Cerebral Palsy Register (NICPR).PARTICIPANTS: All validated cases known to the NICPR, born 1981-2001 and alive and resident in Northern Ireland at age 19 years were included.RESULTS: The study included 1218 persons with CP aged 19-39 years, 46 of whom died in adulthood. The prevalence of CP was 2.38 per 1000. The majority of cases had spastic CP (n=1132/1218, 93%) and could walk (n=949/1218, 78%). Those that died in adulthood typically had bilateral spastic CP (n=39/46) and used a wheelchair (n=40/46).CONCLUSION: The prevalence of CP in adults is similar to other common neurological conditions such as multiple sclerosis and Parkinson's disease. The needs of adults with CP vary widely with almost half having two or more associated impairments that may require multiprofessional and multiagency coordination. Results from this study can be used to inform transformation of health and care services for adults with CP.",

author = "Karen McConnell and Emma Livingstone and Oliver Perra and C Kerr",

note = "{\textcopyright} Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.",

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AU - Perra, Oliver

AU - Kerr, C

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N2 - OBJECTIVES: This study aimed to report the prevalence and clinical characteristics of adults with cerebral palsy (CP) in a geographically defined region of the UK.DESIGN AND SETTING: Cross-sectional study using the Northern Ireland Cerebral Palsy Register (NICPR).PARTICIPANTS: All validated cases known to the NICPR, born 1981-2001 and alive and resident in Northern Ireland at age 19 years were included.RESULTS: The study included 1218 persons with CP aged 19-39 years, 46 of whom died in adulthood. The prevalence of CP was 2.38 per 1000. The majority of cases had spastic CP (n=1132/1218, 93%) and could walk (n=949/1218, 78%). Those that died in adulthood typically had bilateral spastic CP (n=39/46) and used a wheelchair (n=40/46).CONCLUSION: The prevalence of CP in adults is similar to other common neurological conditions such as multiple sclerosis and Parkinson's disease. The needs of adults with CP vary widely with almost half having two or more associated impairments that may require multiprofessional and multiagency coordination. Results from this study can be used to inform transformation of health and care services for adults with CP.

AB - OBJECTIVES: This study aimed to report the prevalence and clinical characteristics of adults with cerebral palsy (CP) in a geographically defined region of the UK.DESIGN AND SETTING: Cross-sectional study using the Northern Ireland Cerebral Palsy Register (NICPR).PARTICIPANTS: All validated cases known to the NICPR, born 1981-2001 and alive and resident in Northern Ireland at age 19 years were included.RESULTS: The study included 1218 persons with CP aged 19-39 years, 46 of whom died in adulthood. The prevalence of CP was 2.38 per 1000. The majority of cases had spastic CP (n=1132/1218, 93%) and could walk (n=949/1218, 78%). Those that died in adulthood typically had bilateral spastic CP (n=39/46) and used a wheelchair (n=40/46).CONCLUSION: The prevalence of CP in adults is similar to other common neurological conditions such as multiple sclerosis and Parkinson's disease. The needs of adults with CP vary widely with almost half having two or more associated impairments that may require multiprofessional and multiagency coordination. Results from this study can be used to inform transformation of health and care services for adults with CP.

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SN - 2044-6055

VL - 11

JO - BMJ Open

JF - BMJ Open

IS - 1

M1 - e044614

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Population-based study on the prevalence and clinical profile of adults with cerebral palsy in Northern Ireland

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