Quality of life and measures of quality of life in patients with neuromuscular disorders

Ted M Burns, Christopher D Graham, Michael R Rose, Zachary Simmons

Research output: Contribution to journalReview articlepeer-review

76 Citations (Scopus)

Abstract

In this review we present an overview of quality of life (QOL) and QOL measures in neuromuscular disorders. We discuss the characteristics of QOL measures used in neuromuscular research, highlighting differences between generic versus disease-specific and global versus health-related QOL instruments. The phenomenon of response shift is reviewed. Commonly used QOL instruments are reviewed for amyotrophic lateral sclerosis, muscle diseases, myasthenia gravis, and polyneuropathy. We also review some of what is known about QOL for patients with these neuromuscular disorders.

Original languageEnglish
Pages (from-to)9-25
Number of pages17
JournalMuscle & Nerve
Volume46
Issue number1
DOIs
Publication statusPublished - Jul 2012

Keywords

  • Activities of Daily Living
  • Health Status
  • Humans
  • Neuromuscular Diseases/psychology
  • Psychometrics
  • Quality of Life
  • Surveys and Questionnaires

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