Rare Diseases Research Landscape project report

Kath Bainbridge*, Rare Disease Research Landscape Steering Group, Amy Jayne McKnight

*Corresponding author for this work

Research output: Book/ReportCommissioned report

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Abstract

Pioneering research is an underpinning theme of the 2021 UK Rare Diseases Framework. In supportof this theme, in England's 2022 Rare Diseases Action Plan we committed to map the rare diseaseresearch landscape to identify gaps and priorities for future funding. Here we present an overallpicture of the rare disease research that was taking place across the UK in a 5-year period, from2016-2021.

Original languageEnglish
PublisherUK Medical Research Council
Number of pages84
DOIs
Publication statusPublished - 21 Sept 2023

Publication series

NameNIHR Open Research
ISSN (Print)2633-4402

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