Sleep disturbances experienced by children with cerebral palsy in Northern Ireland and their impact on the family

Introduction
This study aimed to describe the sleep disturbances experienced by children with cerebral palsy (CP) in Northern Ire-land (NI) and understand the impact on parents/caregivers and siblings.

Patients and Methods
A cross-sectional online survey was con-ducted. Questions pertained to the child’s CP, family sleep and the Sleep Disturbance Scale for Children (SDSC). Caregivers of112 children with CP aged 3–18 years participated. Data were analysed descriptively. Characteristics of the sample were com-pared to the NI CP register to ascertain representativeness.

Results
Significant sleep disturbance (SDSC score>70) was reported for 70% (78/111) of the sample. Disorders of initiating and maintaining sleep were most commonly reported (78%, 87/111). The sample was 63% (71/112) male; mean age 8.8 years(range 3–18), 62% (69/112) had spastic CP and 37% (42/112) were classified as GMFCS IV/V. No significant differences between the sample and individuals known to the NI CP register were identified, with the exception of age. Most caregivers (86%,96/112) reported experiencing sleep disturbances such as sleeping
ConclusionSleep disorders are common in children with CP, yet the very high prevalence of sleep disorders in this representative sample is concerning; as is the subsequent impact on parents. Further investigation and consideration of dedicated support services for this population are justified.