Stigmatising feelings and disclosure apprehension among children with epilepsy

Veronica Lambert, Pamela Gallagher, Stephanie O'Toole, Ailbhe Benson

Research output: Contribution to journalArticle

10 Citations (Scopus)

Abstract

Despite worldwide campaigns to enhance public awareness, understanding and acceptability of epilepsy, stigmatising feelings remain among children with epilepsy and their families. Stigma can be internally felt by the child (shame and embarrassment) or enacted by others (discrimination). Many children with epilepsy and their parents fear disclosure of the condition and exercise a variety of disclosure or concealment strategies. Maintaining these strategies can have a negative, stressful impact on the child's social and psychosocial development and quality of life. Continuing dialogue among families, friends, teachers and health professionals should be initiated and supported.

Original languageEnglish
Pages (from-to)22-6
JournalNursing Children and Young People
Volume26
Issue number6
DOIs
Publication statusPublished - 08 Jul 2014
Externally publishedYes

Keywords

  • Child
  • Counseling
  • Epilepsy/psychology
  • Humans
  • Quality of Life
  • Self Disclosure
  • Stereotyping

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