Stigmatising feelings and disclosure apprehension among children with epilepsy

Veronica Lambert; Pamela Gallagher; Stephanie O'Toole; Ailbhe Benson

doi:10.7748/ncyp.26.6.22.e440

Stigmatising feelings and disclosure apprehension among children with epilepsy

Veronica Lambert, Pamela Gallagher, Stephanie O'Toole, Ailbhe Benson

Research output: Contribution to journal › Article

10 Citations (Scopus)

Abstract

Despite worldwide campaigns to enhance public awareness, understanding and acceptability of epilepsy, stigmatising feelings remain among children with epilepsy and their families. Stigma can be internally felt by the child (shame and embarrassment) or enacted by others (discrimination). Many children with epilepsy and their parents fear disclosure of the condition and exercise a variety of disclosure or concealment strategies. Maintaining these strategies can have a negative, stressful impact on the child's social and psychosocial development and quality of life. Continuing dialogue among families, friends, teachers and health professionals should be initiated and supported.

Original language	English
Pages (from-to)	22-6
Journal	Nursing Children and Young People
Volume	26
Issue number	6
DOIs	https://doi.org/10.7748/ncyp.26.6.22.e440
Publication status	Published - 08 Jul 2014
Externally published	Yes

Keywords

Child
Counseling
Epilepsy/psychology
Humans
Quality of Life
Self Disclosure
Stereotyping

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10.7748/ncyp.26.6.22.e440Licence: Unspecified

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Post-traumatic reactions in parents following admission of their child to the Intensive Care Unit
Author: O'Toole, S., Dec 2020
Supervisor: Adair, P. (Supervisor) & McCormack, D. (Supervisor)
Student thesis: Doctoral Thesis › Doctor of Philosophy

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Cite this

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abstract = "Despite worldwide campaigns to enhance public awareness, understanding and acceptability of epilepsy, stigmatising feelings remain among children with epilepsy and their families. Stigma can be internally felt by the child (shame and embarrassment) or enacted by others (discrimination). Many children with epilepsy and their parents fear disclosure of the condition and exercise a variety of disclosure or concealment strategies. Maintaining these strategies can have a negative, stressful impact on the child's social and psychosocial development and quality of life. Continuing dialogue among families, friends, teachers and health professionals should be initiated and supported. ",

keywords = "Child, Counseling, Epilepsy/psychology, Humans, Quality of Life, Self Disclosure, Stereotyping",

author = "Veronica Lambert and Pamela Gallagher and Stephanie O'Toole and Ailbhe Benson",

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AU - Benson, Ailbhe

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AB - Despite worldwide campaigns to enhance public awareness, understanding and acceptability of epilepsy, stigmatising feelings remain among children with epilepsy and their families. Stigma can be internally felt by the child (shame and embarrassment) or enacted by others (discrimination). Many children with epilepsy and their parents fear disclosure of the condition and exercise a variety of disclosure or concealment strategies. Maintaining these strategies can have a negative, stressful impact on the child's social and psychosocial development and quality of life. Continuing dialogue among families, friends, teachers and health professionals should be initiated and supported.

KW - Child

KW - Counseling

KW - Epilepsy/psychology

KW - Humans

KW - Quality of Life

KW - Self Disclosure

KW - Stereotyping

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JO - Nursing Children and Young People

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SN - 2046-2336

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ER -

Stigmatising feelings and disclosure apprehension among children with epilepsy

Abstract

Keywords

Access to Document

Post-traumatic reactions in parents following admission of their child to the Intensive Care Unit

Cite this