TY - JOUR
T1 - The challenges and opportunities of mental health data sharing in the UK
AU - Ford, Tamsin
AU - Mansfield, Karen L.
AU - Markham, Sarah
AU - McManus, Sally
AU - John, Ann
AU - O'Reilly, Dermot
AU - Newlove-Delgado, Tamsin
AU - Iveson, Matthew
AU - Fazel, Mina
AU - Das Munshi, Jayati
AU - Dutta, Rina
AU - Leavey , Gerry
AU - Downs, Johnny
AU - Foley, Tom
AU - Russell, Abigail
AU - Maguire, Aideen
AU - Moon, Graham
AU - Kirkham, Elizabeth J
AU - Finning, Katie
AU - Russell, Ginny
AU - Moore, Anna
AU - Jones, Peter
AU - Shenow, Sarah
PY - 2021/6
Y1 - 2021/6
N2 - The UK's National Health Service (NHS) generates uniquely rich data that should be rapidly deployed for policy and service improvement, yet researchers report difficulties in accessing these data. Paradoxically, these restrictions are occurring at the same time as the open science movement, which encourages data sharing to improve the rigour, transparency, and replicability of research. We describe the urgency of improvements to data access and propose solutions from a mental health research perspective, although the issues discussed extend to all areas in which analysis and linkage of health data support policy and practice. Actions are needed at every level, from data users and data custodians to government (panel).
AB - The UK's National Health Service (NHS) generates uniquely rich data that should be rapidly deployed for policy and service improvement, yet researchers report difficulties in accessing these data. Paradoxically, these restrictions are occurring at the same time as the open science movement, which encourages data sharing to improve the rigour, transparency, and replicability of research. We describe the urgency of improvements to data access and propose solutions from a mental health research perspective, although the issues discussed extend to all areas in which analysis and linkage of health data support policy and practice. Actions are needed at every level, from data users and data custodians to government (panel).
U2 - 10.1016/S2589-7500(21)00078-9
DO - 10.1016/S2589-7500(21)00078-9
M3 - Comment/debate
VL - 3
SP - e333-e336
JO - The Lancet Digital Health
JF - The Lancet Digital Health
IS - 6
ER -