TY - JOUR
T1 - The educational needs of adolescent and young adult renal transplant recipients: a scoping review
AU - Corr, Michael
AU - McKeaveney, Clare
AU - Wurm, Fina
AU - Courtney, Aisling E.
AU - Noble, Helen
PY - 2023/2/14
Y1 - 2023/2/14
N2 - Renal transplantation is the gold-standard treatment for adolescents and young adults with
end-stage renal disease. Despite enjoying excellent short-term outcomes, they suffer the worst rates
of premature transplant function loss. Health behaviors: such as lack of adherence to immunosuppressive medications, are felt to be the major contributory factor. Understanding the educational
needs of young renal transplant recipients allows healthcare practitioners to better support patients
in managing their chronic disease. The aim of this scoping review was to understand what is known
about their educational needs. A scoping review methodology was followed. Following an online
search, study titles, and abstracts were screened for eligibility, followed by full-text assessment and
data extraction. Data were qualitatively analyzed using thematic analysis. A total of 29 studies were
included in the scoping review. In young people who struggled with self-management, three themes
were identified (1) the Needs of the disrupted youth, (2) the Needs of the disorganized youth (3) the
Needs of the distressed youth. There was a paucity of research to identify the protective factors that
enable young recipients to successfully manage their health. This review outlines current knowledge
of the patient education needs of young transplant recipients. It also highlights remaining research
gaps that will need to be addressed with future research.
AB - Renal transplantation is the gold-standard treatment for adolescents and young adults with
end-stage renal disease. Despite enjoying excellent short-term outcomes, they suffer the worst rates
of premature transplant function loss. Health behaviors: such as lack of adherence to immunosuppressive medications, are felt to be the major contributory factor. Understanding the educational
needs of young renal transplant recipients allows healthcare practitioners to better support patients
in managing their chronic disease. The aim of this scoping review was to understand what is known
about their educational needs. A scoping review methodology was followed. Following an online
search, study titles, and abstracts were screened for eligibility, followed by full-text assessment and
data extraction. Data were qualitatively analyzed using thematic analysis. A total of 29 studies were
included in the scoping review. In young people who struggled with self-management, three themes
were identified (1) the Needs of the disrupted youth, (2) the Needs of the disorganized youth (3) the
Needs of the distressed youth. There was a paucity of research to identify the protective factors that
enable young recipients to successfully manage their health. This review outlines current knowledge
of the patient education needs of young transplant recipients. It also highlights remaining research
gaps that will need to be addressed with future research.
U2 - 10.3390/healthcare11040566
DO - 10.3390/healthcare11040566
M3 - Article
SN - 2227-9032
VL - 11
JO - Healthcare
JF - Healthcare
IS - 4
M1 - 566
ER -