The experience of type 2 diabetes self-management in adults with intellectual disabilities and their caregivers:A review of the literature using meta-aggregative synthesis and an appraisal of rigor

Michael Brown, Andrew Maine, Adele Dickson, Maria Truesdale-Kennedy

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Background People with intellectual disabilities (ID) experience significant barriers to diabetes self-management (DSM), yet there remains a paucity of research within this population. An overview of the literature on people with ID and their caregivers’ experiences of living with and self-managing type 2 diabetes (T2D) is provided.
Methods Meta-aggregative methods were adopted to synthesise results, and an appraisal was reported of rigour.
Result A total of eight studies met the inclusion criteria and four themes were extracted: i) “Frustration over lifestyle adjustments”; ii) "Limited understanding and inadequate educational resources"; iii) “Limited training and knowledge in staff”; iv) "Potential for effective DSM with appropriate support".
Conclusion Current support is inadequate to meet the needs of people with ID and their caregivers self-managing diabetes. Structured education to improve health literacy and diabetes knowledge in people with ID is required, together with training for caregivers which leads to a culture of nurturing autonomy.
Original languageEnglish
Pages (from-to)1-15
JournalJournal of Intellectual Disabilities
Publication statusPublished - 15 May 2018


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