The Millennium child with autism: Early childhood trajectories for health, education and economic wellbeing

Karola Dillenburger; Julie Ann Jordan; Lyn McKerr; Mickey Keenan

doi:10.3109/17518423.2014.964378

The Millennium child with autism: Early childhood trajectories for health, education and economic wellbeing

Karola Dillenburger^*, Julie Ann Jordan, Lyn McKerr, Mickey Keenan

^*Corresponding author for this work

Queen's University Belfast

Research output: Contribution to journal › Article › peer-review

39 Citations (Scopus)

Abstract

Objective: Most of what we know about children with autism spectrum disorder (ASD) is based on post-diagnostic, retrospective, self-select studies. Oftentimes, there is no direct comparison between trajectories of children with ASD and children without ASD.

Methods: To circumvent both of these problems, the present secondary data analysis utilised a large-scale longitudinal general population survey of children born in the year 2000 (i.e. the Millennium Cohort Study; MCS; n=18522). Bi-annual MCS data were available from five data sweeps (children aged 9 months to 11 years of age).

Results: Pre-diagnostic data showed early health problems differentiated children later diagnosed with autism from non-diagnosed peers. Prevalence was much higher than previously estimated (3.5% for 11-year olds). Post-diagnosis, trajectories deteriorated significantly for the children with ASD and their families in relation to education, health and economic wellbeing.

Conclusion: These findings raise many issues for service delivery and the rights of persons with disabilities and their families.

Original language	English
Pages (from-to)	37-46
Number of pages	10
Journal	Developmental Neurorehabilitation
Volume	18
Issue number	1
Early online date	07 Oct 2014
DOIs	https://doi.org/10.3109/17518423.2014.964378
Publication status	Published - Feb 2015

Keywords

Applied behaviour analysis
Autism spectrum disorder
Millennium Cohort Study
Parents
Quality of life
Secondary data analysis
Service delivery
UK

ASJC Scopus subject areas

Pediatrics, Perinatology, and Child Health
Rehabilitation
Developmental Neuroscience

Access to Document

10.3109/17518423.2014.964378

1 Active

R3346EDU: Helping the most vulnerable out of the poverty trap ......
Dillenburger, K. (PI)
01/08/2011 → …
Project: Research

2 Participation in conference

Association for Behavior Analysis International (ABAI) 8th International Conference
Dillenburger, K. (Speaker)
27 Sept 2015 → 29 Sept 2015
Activity: Participating in or organising an event types › Participation in conference
7th Conference of the European Association for Behaviour Analysis Conference
Dillenburger, K. (Speaker)
10 Sept 2014 → 13 Sept 2014
Activity: Participating in or organising an event types › Participation in conference

Karola Dillenburger
- k.dillenburgerqub.acuk
- School of Social Sciences, Education and Social Work - Professor
Person: Academic

39 Citations
4 Commissioned report
2 Article
1 Paper

Helping the most vulnerable out of the poverty trap and reducing inequality: Policies, strategies, and services for individuals with Autism Spectrum Disorder, including intellectual and neurodevelopmental disabilities: Benchmarking Autism Services Efficacy: BASE Project (Volume 5) Final Report
Dillenburger, K., McKerr, L. & Jordan, J.-A., 2016, Queen's University Belfast.
Research output: Book/Report › Commissioned report

Open Access
File
Autism awareness, knowledge, and attitudes in the general population of children and young people.
Dillenburger, K., Jordan, J.-A. & McKerr, L., 2015, 3 p.
Research output: Book/Report › Commissioned report
Helping the most vulnerable out of the poverty trap and reducing inequality: Policies, strategies, and services for individuals with Autism Spectrum Disorder, including intellectual and neurodevelopmental disabilities: Benchmarking Autism Services Efficacy: BASE Project (Volume 3) Secondary Data analysis
Dillenburger, K., Jordan, J.-A. & McKerr, L., 01 Mar 2014, Belfast: Queen's University Belfast. 236 p.
Research output: Book/Report › Commissioned report

Open Access
File

Cite this

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title = "The Millennium child with autism: Early childhood trajectories for health, education and economic wellbeing",

abstract = "Objective: Most of what we know about children with autism spectrum disorder (ASD) is based on post-diagnostic, retrospective, self-select studies. Oftentimes, there is no direct comparison between trajectories of children with ASD and children without ASD. Methods: To circumvent both of these problems, the present secondary data analysis utilised a large-scale longitudinal general population survey of children born in the year 2000 (i.e. the Millennium Cohort Study; MCS; n=18522). Bi-annual MCS data were available from five data sweeps (children aged 9 months to 11 years of age). Results: Pre-diagnostic data showed early health problems differentiated children later diagnosed with autism from non-diagnosed peers. Prevalence was much higher than previously estimated (3.5% for 11-year olds). Post-diagnosis, trajectories deteriorated significantly for the children with ASD and their families in relation to education, health and economic wellbeing. Conclusion: These findings raise many issues for service delivery and the rights of persons with disabilities and their families.",

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author = "Karola Dillenburger and Jordan, {Julie Ann} and Lyn McKerr and Mickey Keenan",

year = "2015",

month = feb,

doi = "10.3109/17518423.2014.964378",

language = "English",

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journal = "Developmental Neurorehabilitation",

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PY - 2015/2

Y1 - 2015/2

N2 - Objective: Most of what we know about children with autism spectrum disorder (ASD) is based on post-diagnostic, retrospective, self-select studies. Oftentimes, there is no direct comparison between trajectories of children with ASD and children without ASD. Methods: To circumvent both of these problems, the present secondary data analysis utilised a large-scale longitudinal general population survey of children born in the year 2000 (i.e. the Millennium Cohort Study; MCS; n=18522). Bi-annual MCS data were available from five data sweeps (children aged 9 months to 11 years of age). Results: Pre-diagnostic data showed early health problems differentiated children later diagnosed with autism from non-diagnosed peers. Prevalence was much higher than previously estimated (3.5% for 11-year olds). Post-diagnosis, trajectories deteriorated significantly for the children with ASD and their families in relation to education, health and economic wellbeing. Conclusion: These findings raise many issues for service delivery and the rights of persons with disabilities and their families.

AB - Objective: Most of what we know about children with autism spectrum disorder (ASD) is based on post-diagnostic, retrospective, self-select studies. Oftentimes, there is no direct comparison between trajectories of children with ASD and children without ASD. Methods: To circumvent both of these problems, the present secondary data analysis utilised a large-scale longitudinal general population survey of children born in the year 2000 (i.e. the Millennium Cohort Study; MCS; n=18522). Bi-annual MCS data were available from five data sweeps (children aged 9 months to 11 years of age). Results: Pre-diagnostic data showed early health problems differentiated children later diagnosed with autism from non-diagnosed peers. Prevalence was much higher than previously estimated (3.5% for 11-year olds). Post-diagnosis, trajectories deteriorated significantly for the children with ASD and their families in relation to education, health and economic wellbeing. Conclusion: These findings raise many issues for service delivery and the rights of persons with disabilities and their families.

KW - Applied behaviour analysis

KW - Autism spectrum disorder

KW - Millennium Cohort Study

KW - Parents

KW - Quality of life

KW - Secondary data analysis

KW - Service delivery

KW - UK

U2 - 10.3109/17518423.2014.964378

DO - 10.3109/17518423.2014.964378

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ER -

The Millennium child with autism: Early childhood trajectories for health, education and economic wellbeing

Abstract

Keywords

ASJC Scopus subject areas

Access to Document

Fingerprint

Projects

R3346EDU: Helping the most vulnerable out of the poverty trap ......

Activities

Association for Behavior Analysis International (ABAI) 8th International Conference

7th Conference of the European Association for Behaviour Analysis Conference

Profiles

Karola Dillenburger

Research output

Helping the most vulnerable out of the poverty trap and reducing inequality: Policies, strategies, and services for individuals with Autism Spectrum Disorder, including intellectual and neurodevelopmental disabilities: Benchmarking Autism Services Efficacy: BASE Project (Volume 5) Final Report

Autism awareness, knowledge, and attitudes in the general population of children and young people.

Cite this