The views of parents of children and young people with intellectual disability on relationships and sexuality education: findings from a qualitative study

Background: Parents and primary caregivers recognise the challenges of transitioning to adulthood for children and young people with intellectual disability. They feel unprepared for relationships and sexuality education and recognise evidence-informed programmes are required for safety and healthy relationships.

Aim: To identify the views and experiences of parents of children and young people with intellectual disability regarding RSE programmes.

Methods: Eleven parents participated in semi-structured interviews, with transcripts thematically analysed.

Results: Three themes emerged: (i) establishing collaborations with schools; (ii) addressing and supporting individual needs; and (iii) preparing for adulthood. Parents have concerns and challenges during puberty. Some parents are fearful and anxious regarding vulnerability and safety of their children and young people.

Conclusions: Parents want tailored RSE programmes delivered in school and content shared to support learning at home.