Transitions from child to adult health care for young people with intellectual disabilities: A systematic review: Health transitions and young people with intellectual disabilities

Michael Brown*, Juliet Macarthur, Anna Higgins, Zoe Chouliara

*Corresponding author for this work

Research output: Contribution to journalReview article

2 Citations (Scopus)
49 Downloads (Pure)

Abstract

ABSTRACT
Aims: To examine the experiences of health transitions for young people with intellectual disabilitiesand their carers and identify the implications for nursing practice.

Design: A systematic review and critical appraisal of qualitative, quantitative and mixed methods studies.
Data sources: A search of the relevant literature published 2007
-2017 was carried out in AMED,
ASSIA, CINAHL, MEDLINE, PsycINFO, PubMed and Science Direct Sociological Abstracts
databases.

Review Methods: A total of 12 out of 637 papers identified in the search met the inclusion criteria forthis review. A narrative review of the papers was undertaken by synthesising the key findings and grouping them into concepts and emergent themes.

Results: Four main themes were identified: (i) becoming an adult; (ii) fragmented transition process and care; (iii) parents as advocates in emotional turmoil; and (iv) making transitions happen.

Conclusion: The range of issues that have an impact on the transition from child to adult health services for young people with intellectual disabilities and their carers raise important implications for
policy development, nursing practice and education
Original languageEnglish
Pages (from-to)1-17
JournalJournal of Advanced Nursing
DOIs
Publication statusPublished - 30 Apr 2019

Keywords

  • complex needs
  • health services
  • Intellectual disabilities
  • nursing
  • transitions
  • systematic review

ASJC Scopus subject areas

  • Nursing(all)

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