Decision-making processes in learning disability services

: in whose best interests?

Abstract

Decision-making is part of our daily lives. Our lives often involve making small decisions throughout each day. However, there are times when we will make bigger, more complex decisions such as where to live or buying a car or a house.

The aim of this research study was to explore how decisions were made for individuals with a learning disability who have experienced decision-making processes, when they lacked the mental capacity to make a specific decision. Traditionally, individuals with a learning disability, and particularly those who lacked capacity to understand research have been excluded from research studies. This research is specifically focused on those whose decision-making may be impaired and so has not excluded people if they lack the capacity to understand the research which has been facilitated by the partial implementation of the MCA (NI) 2016. The findings of this research demonstrate the value and importance of including the voices of individuals with a learning disability and of professionals who have experienced Best Interests decisions. The research suggests the need for a regionally agreed approach to Best Interests decision-making processes in Northern Ireland which builds on the existing MCA (NI) 2016 Code of Practice. Further research is required to explore the experiences of the support people in an individual's life.

Thesis is embargoed until 31 December 2024.

Date of Award	Dec 2023
Original language	English
Awarding Institution	Queen's University Belfast
Sponsors	Northern Ireland Department for the Economy
Supervisor	Lorna Montgomery (Supervisor) & Gavin Davidson (Supervisor)