In recent years, there have been increasing opportunities for developing new and diverse creative arts-based interventions for use in palliative care to benefit multiple patient outcomes. This research project covers the design and implementation of individual Listening Experiences and presents and discusses feedback from a feasibility study conducted at an outpatient service in Northern Ireland. Using a mixed-methods research approach, ten participants recruited from an outpatient service took part in a creative arts intervention known as ‘From My Perspective’. This process involved recording life story-based interviews with patients, which were then developed into unique personalised ‘Listening Experiences’ presented in a physical format known as the ‘Memory Box’. Bespoke questionnaires were also used in this study to help understand the acceptability of the intervention and to see whether the intervention could be beneficial in allowing participants to create a legacy item that can be shared with friends and family. This study incorporated the use of validated tools such as the McGill Quality-of-Life questionnaire, adapted versions of the Edmonton Symptom Assessment System, and the WHO-5 Well-Being Index to monitor any changes or improvements in patient outcomes relating to their quality-of-life and well-being. Whilst the number of participants recruited as part of this study makes it difficult to demonstrate the effectiveness of the intervention on a large scale, there is clear evidence to suggest its acceptance within multiple healthcare organisations, in addition to the benefits it can have for patients and their families.
| Date of Award | Jul 2024 |
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| Original language | English |
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| Awarding Institution | - Queen's University Belfast
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| Sponsors | Northern Ireland Department for the Economy |
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| Supervisor | Pedro Rebelo (Supervisor), Audrey Roulston (Supervisor) & Paul Best (Supervisor) |
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- sonic arts
- palliative care
- creative arts
- music technology
- end-of-life
- music therapy
- art therapy
- storytelling
- life story interview
- cancer
- music
- music composition
- soundscapes
- technology
- sound design
Individualised listening experiences to improve the mental health, well-being, and quality-of-life for service users within a palliative care context: a feasibility study
Gibson, I. (Author). Jul 2024
Student thesis: Doctoral Thesis › Doctor of Philosophy