ESRC Festival of Social Sciences - Waiting for a transplant on dialysis: living while dying with kidney disease

    Impact: Societial Impact, Public Service Impact, Cultural Impact

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    Description of impact

    Public engagement; interdisciplinary contribution; illuminating end of life issues in a death denying culture;

    Who is affected

    Patients, carers, health care practitioners, policy makers, academics.

    Narrative

    The event is titled: ‘Waiting for a transplant on dialysis: living while dying with kidney disease’, and is aimed at improving knowledge of kidney disease and the impact this diagnosis has on patients, families and other carers. The event will include several formats including a presentation centred on facing mortality with chronic disease, by Dr Jimmy McAleavey, currently a Lecturer in Creative Writing at the Seamus Heaney Centre/School of English, Queens University Belfast. Jimmy is an acclaimed scriptwriter and has written for feature films, written and directed short films, scripted TV drama and produced and directed factual TV see http://www.qub.ac.uk/schools/SeamusHeaneyCentreforPoetry/Staff/DrJimmyMcAleavey/
    His most recent work ‘The Virgin Father – a stage play’ ran for several weeks at the, Down Arts Centre, The Playhouse Derry/Londonderry, and the Lyric Theatre, Belfast.
    We also plan a film viewing of a piece created by our newly established Renal Arts Group in collaboration with patients, academics and healthcare staff. The film portrays the devastating diagnosis of renal disease, with no cure, and the demanding treatments to be endured as health deteriorates whilst waiting for the elusive kidney transplant, not always available and in short supply.
    The event will conclude with a debate around improving knowledge of kidney disease and how we might improve the kidney donor rate. This will be co-facilitated by a kidney surgeon and a patient.

    Category of impact

    • Societial Impact
    • Public Service Impact
    • Cultural Impact

    ID: 50961580