Empowerment into practice: a realist evaluation of a dementia empowerment service
Research output: Contribution to conference › Paper
Method: We used a realist evaluation approach that involved interviews with 15 PWD, three staff and two board members, ethnographic observations, along with documentary analysis to identify ‘what works, for whom, under what circumstances’. Analysis followed realist logic to develop context-mechanism-outcome configurations (CMOcs).
Results: The Dementia NI service model of empowerment involved the formation and maintenance of social groups of PWD. Facilitators, selected and recruited by PWD, supported six groups, comprising one to four members with mild to moderate cognitive impairment. Facilitators helped expand empowerment groups, facilitated decision-making, awareness raising and consultation opportunities alongside group members. Interview and observational data suggested that ‘Empowerment Groups’ helped members develop a shared social identity and a sense of collective strength, demonstrated by a strong activist mentality among group members to challenge the stigma surrounding dementia. Group members also reported improved quality of life. Observational data also suggested that widespread implementation of this empowerment model has the potential to reduce stigma, increase social inclusion and involvement of PWD as active co-producers of policy and service development, better services and support.
Conclusion: This case study of Dementia NI highlights potential boundaries and challenges to empowerment, in terms of requiring additional support from staff without dementia. However, despite these challenges, empowerment-driven organisations can and should be committed to involving members in lead roles and key decision-making.
|Publication status||Published - 31 Oct 2018|
|Event||Alzheimer Europe Conference, Barcelona, 2018, Making dementia a European priority - Barcelo Sants Hotel, Barcelona, Spain|
Duration: 29 Oct 2018 → 31 Oct 2018
|Conference||Alzheimer Europe Conference, Barcelona, 2018, Making dementia a European priority|
|Period||29/10/2018 → 31/10/2018|